Frances Payne Bolton School of Nursing, Case Western Reserve University, Cleveland, OH 44106, USA.
Sci Transl Med. 2011 May 11;3(82):82cm12. doi: 10.1126/scitranslmed.3002133.
Although persons with disabilities of all kinds have as wide a range of health conditions as the general population, they are profoundly underrepresented in mainstream health research. Such underrepresentation might contribute to the health disparities in this population. We propose the concept of Universal Design of Research (UDR), which would promote routine inclusion of persons with disabilities in mainstream biomedical and psychosocial studies, without the need for adaptation or specialized design. Elements of UDR include the use of multisensory formats for recruiting participants, presenting research instruments and interventions, and data gathering from participants and should promote the inclusion of participants with a wide range of abilities, thus enhancing the generalizability of results.
尽管各种残疾人士的健康状况与一般人群一样广泛，但他们在主流健康研究中代表性严重不足。这种代表性不足可能导致该人群的健康差距。我们提出了研究通用设计（UDR）的概念，这将促进在主流的生物医学和心理社会研究中常规纳入残疾人士，而无需进行适应性调整或专门设计。UDR 的要素包括使用多感官格式招募参与者、呈现研究工具和干预措施，以及从参与者那里收集数据，从而应该促进包括具有广泛能力的参与者的纳入，从而提高结果的普遍性。
