Goudarzi Fateme, Abedi Heidarali, Zarea Kourosh
Social Determinants of Health Research Center, Lorestan University of Medical Sciences, Khorramabad, Iran.
Faculty of Nursing and Midwifery, Isfahan (Khorasgan) Branch, Islamic Azad University , Isfahan, Iran.
Iran J Nurs Midwifery Res. 2020 Sep 1;25(5):393-400. doi: 10.4103/ijnmr.IJNMR_187_18. eCollection 2020 Sep-Oct.
Providing care for patients in Persistent Vegetative State (PVS) by family caregivers without enough training and knowledge may be problematic both for the patients and for the caregivers. Therefore, the present study tries to explain the experiences of family caregivers of patients with PVS of seeking information needed to provide adequate care.
Twenty two participants, including 17 family caregivers and 5 professional caregivers were enrolled by purposive sampling into this qualitative content analysis study, carried out between 2013 and 2015. Unstructured interviews and field notes were used to gather the data. Data collection was stopped when data saturation was achieved. Data analysis was performed by content analysis based on Graneheim and Lundman's approach.
As a result of the analysis of the collected data a main theme emerged labeled as "Seeking constructive education" with three categories including "Neglected requisite education," "Greedy search for useful education" and "Dynamic independence in care."
In this study, information seeking by family caregivers of patients with PVS was constructive. Family caregivers insistently sought needed information from various sources. Ultimately, they found these insistent efforts beneficial and fruitful, because their efforts made them independent in providing care for their patients.
家庭护理人员在没有足够培训和知识的情况下为持续性植物状态（PVS）患者提供护理，这对患者和护理人员来说都可能存在问题。因此，本研究试图解释PVS患者的家庭护理人员在寻求提供充分护理所需信息方面的经历。
通过目的抽样法，选取了22名参与者，其中包括17名家庭护理人员和5名专业护理人员，参与了这项在2013年至2015年期间进行的定性内容分析研究。采用非结构化访谈和实地记录来收集数据。当达到数据饱和时停止数据收集。基于Graneheim和Lundman的方法，通过内容分析进行数据分析。
对收集到的数据进行分析后，出现了一个主要主题，即“寻求建设性教育”，包括三个类别：“被忽视但必要的教育”、“对有用教育的急切探寻”和“护理中的动态独立性”。
在本研究中，PVS患者的家庭护理人员寻求信息的行为具有建设性。家庭护理人员坚持不懈地从各种来源寻求所需信息。最终，他们发现这些坚持不懈的努力是有益且富有成效的，因为这些努力使他们能够独立为患者提供护理。
