• 文献检索
  • 文档翻译
  • 深度研究
  • 学术资讯
  • Suppr Zotero 插件Zotero 插件
  • 邀请有礼
  • 套餐&价格
  • 历史记录
应用&插件
Suppr Zotero 插件Zotero 插件浏览器插件Mac 客户端Windows 客户端微信小程序
定价
高级版会员购买积分包购买API积分包
服务
文献检索文档翻译深度研究API 文档MCP 服务
关于我们
关于 Suppr公司介绍联系我们用户协议隐私条款
关注我们

Suppr 超能文献

核心技术专利:CN118964589B侵权必究
粤ICP备2023148730 号-1Suppr @ 2026

文献检索

告别复杂PubMed语法,用中文像聊天一样搜索,搜遍4000万医学文献。AI智能推荐,让科研检索更轻松。

立即免费搜索

文件翻译

保留排版,准确专业,支持PDF/Word/PPT等文件格式,支持 12+语言互译。

免费翻译文档

深度研究

AI帮你快速写综述,25分钟生成高质量综述,智能提取关键信息,辅助科研写作。

立即免费体验

中风幸存者及其家庭照顾者的健康信息寻求体验:一项定性研究。

Stroke Survivors and Their Family Caregivers' Experiences of Health Information Seeking: A Qualitative Study.

机构信息

Department of Nursing, School of Nursing and Midwifery, Tehran Medical Sciences, Islamic Azad University, Tehran, Iran.

出版信息

Int J Community Based Nurs Midwifery. 2022 Oct;10(4):269-278. doi: 10.30476/IJCBNM.2022.94489.1997.

DOI:10.30476/IJCBNM.2022.94489.1997
PMID:36274666
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC9579452/
Abstract

BACKGROUND

Stroke is a significant and unpredictable event that affects physical and mental functions. A useful approach to returning to a normal life is to seek out health information. This study aimed to explore the experiences from health information seeking in the stroke survivors and their family caregivers.

METHODS

This study was carried out using qualitative content analysis. Participants included five stroke survivors and fifteen family caregivers who were selected purposively from the Rofideh Rehabilitation Center and private physiotherapy centers in Tehran. Data were collected from semi-structured interviews. Data analysis was performed using Graneheim and Lundman's method manually in Word software. Sampling was carried out in 2021.

RESULTS

Two main categories were extracted 1): adapting and learning resulting from awareness including optimization of living environment and disease management, and 2) fear and inquietude on the information way including confused and insolvent in receiving information, and doubts about the accuracy of information.

CONCLUSION

The health information seeking created adaptability and relative stability in some stroke survivors and their family caregivers. However, in others, there was still a sense of anxiety and uncertainty. Thus, understanding health information seeking experiences helps health policymakers and administrators to provide information and training based on evidence and individual needs of the client and family.

摘要

背景

中风是一种严重且不可预测的事件,会影响身体和心理功能。寻求健康信息是恢复正常生活的一种有效方法。本研究旨在探讨中风幸存者及其家庭照顾者在健康信息寻求方面的体验。

方法

本研究采用定性内容分析法进行。参与者包括 5 名中风幸存者和 15 名家庭照顾者,他们是从德黑兰的罗菲德康复中心和私人物理治疗中心有目的地选择的。数据来自半结构化访谈。使用 Graneheim 和 Lundman 的方法在 Word 软件中手动进行数据分析。抽样于 2021 年进行。

结果

提取出两个主要类别:1)意识引起的适应和学习,包括优化生活环境和疾病管理,2)信息途径引起的恐惧和不安,包括信息接收混乱和无力,以及对信息准确性的怀疑。

结论

健康信息寻求为一些中风幸存者及其家庭照顾者创造了适应性和相对稳定性。然而,在其他人中,仍然存在焦虑和不确定性。因此,了解健康信息寻求体验有助于卫生政策制定者和管理者根据证据和客户及家庭的个体需求提供信息和培训。

相似文献

1
Stroke Survivors and Their Family Caregivers' Experiences of Health Information Seeking: A Qualitative Study.中风幸存者及其家庭照顾者的健康信息寻求体验:一项定性研究。
Int J Community Based Nurs Midwifery. 2022 Oct;10(4):269-278. doi: 10.30476/IJCBNM.2022.94489.1997.
2
Information Seeking Experiences of Family Caregivers of Patients with Persistent Vegetative State: A Qualitative Study.持续性植物状态患者家庭照顾者的信息寻求经历:一项定性研究
Iran J Nurs Midwifery Res. 2020 Sep 1;25(5):393-400. doi: 10.4103/ijnmr.IJNMR_187_18. eCollection 2020 Sep-Oct.
3
Seeking healthcare services post-stroke: a qualitative descriptive study exploring family caregiver and stroke survivor perspectives in an asian setting.卒中后寻求医疗保健服务:在亚洲背景下探索家庭照顾者和卒中幸存者观点的定性描述性研究。
BMC Neurol. 2021 Nov 5;21(1):429. doi: 10.1186/s12883-021-02463-7.
4
The experience of stroke survivors and caregivers during hospital-to-home transitional care: A qualitative longitudinal study.卒中幸存者和照护者在医院-家庭过渡护理期间的体验:一项定性纵向研究。
Int J Nurs Stud. 2022 Jun;130:104213. doi: 10.1016/j.ijnurstu.2022.104213. Epub 2022 Feb 26.
5
Needs of family members caring for stroke survivors in china: A deductive qualitative content analysis study by using the caregiver task inventory-25.照顾中国脑卒中幸存者的家庭成员的需求:使用 caregiver task inventory-25 的演绎定性内容分析研究。
BMC Geriatr. 2022 Feb 3;22(1):96. doi: 10.1186/s12877-022-02774-5.
6
Caring for stroke survivors: experiences of family caregivers in Sri Lanka - a qualitative study.照顾中风幸存者:斯里兰卡家庭照顾者的经历——一项定性研究
Top Stroke Rehabil. 2018 Sep;25(6):397-402. doi: 10.1080/10749357.2018.1481353. Epub 2018 Jul 20.
7
Developing a falls prevention program for community-dwelling stroke survivors in Singapore: client and caregiver perspectives.在新加坡为社区居住的中风幸存者制定防跌倒计划:患者和照顾者的观点。
Disabil Rehabil. 2019 May;41(9):1044-1054. doi: 10.1080/09638288.2017.1419293. Epub 2017 Dec 25.
8
A different way of life: a qualitative study on the experiences of family caregivers of stroke survivors living at home.别样的生活:一项关于居家脑卒中幸存者家庭照顾者体验的定性研究。
Br J Community Nurs. 2022 Nov 2;27(11):558-566. doi: 10.12968/bjcn.2022.27.11.558.
9
Factors affecting support: experiences of Iranian older spousal caregivers of people with Alzheimer's disease and their support resources.影响支持的因素:伊朗老年阿尔茨海默病患者配偶照顾者的经历及其支持资源
Aging Ment Health. 2025 Feb;29(2):265-273. doi: 10.1080/13607863.2024.2385453. Epub 2024 Aug 4.
10
Suspended Life Pattern: A Qualitative Study on Personal Life Among Family Caregivers of Hemodialysis Patients in Iran.悬浮生活模式:伊朗血液透析患者家庭照顾者个人生活的质性研究
Int Q Community Health Educ. 2018 Jul;38(4):225-232. doi: 10.1177/0272684X18773763. Epub 2018 May 2.

引用本文的文献

1
Exploring Barriers and Facilitators to Early Rehabilitation in Post-Stroke Hand Dysfunction: A Qualitative Study.探索中风后手部功能障碍早期康复的障碍与促进因素:一项定性研究。
J Multidiscip Healthc. 2025 Jul 31;18:4469-4480. doi: 10.2147/JMDH.S533560. eCollection 2025.
2
Explaining the multifaceted experiences of family caregivers of stroke survivors: a qualitative study in Iran.解读中风幸存者家庭照顾者的多方面经历:伊朗的一项定性研究
BMJ Open. 2025 May 26;15(5):e097463. doi: 10.1136/bmjopen-2024-097463.
3
Self-actualization of families with a cerebrovascular disease patient by nurses, and of self-actualization of nurses themselves: an integrative review based on family care/caring theory.护士对脑血管疾病患者家庭的自我实现以及护士自身的自我实现:基于家庭护理/关怀理论的综合综述
BMC Nurs. 2025 Jan 21;24(1):71. doi: 10.1186/s12912-025-02731-8.
4
Care burden and the predictive role of spiritual well-being and religious coping: A cross sectional study among Iranian family caregivers of patients with stroke.照护负担以及精神健康和宗教应对的预测作用:一项针对伊朗中风患者家庭照护者的横断面研究。
Health Sci Rep. 2024 Jun 4;7(6):e2155. doi: 10.1002/hsr2.2155. eCollection 2024 Jun.
5
Knowledge, attitude and practice of poststroke depression among patients with poststroke depression and their family members in Heilongjiang Province, China: a cross-sectional study.中国黑龙江省脑卒中后抑郁患者及其家属对脑卒中后抑郁的知识、态度和实践:一项横断面研究。
BMJ Open. 2024 May 15;14(5):e078276. doi: 10.1136/bmjopen-2023-078276.

本文引用的文献

1
Experience of Information Provision at the Stroke Unit From the Perspective of Relatives to Stroke Survivors.从中风幸存者亲属角度看卒中单元的信息提供经验
Rehabil Process Outcome. 2020 Aug 13;9:1179572720947086. doi: 10.1177/1179572720947086. eCollection 2020.
2
The influence of online health information on health decisions: A systematic review.在线健康信息对健康决策的影响:系统评价。
Patient Educ Couns. 2021 Apr;104(4):770-784. doi: 10.1016/j.pec.2020.11.016. Epub 2020 Nov 21.
3
The experience of uncertainty for patients, families and healthcare providers in post-stroke palliative and end-of-life care: a qualitative meta-synthesis.脑卒中后姑息治疗和终末期患者、家属和医护人员的不确定性体验:定性元分析。
Age Ageing. 2021 Feb 26;50(2):534-545. doi: 10.1093/ageing/afaa229.
4
An exploration of information seeking behavior among persons living with spinal cord injury in Switzerland.瑞士脊髓损伤患者信息寻求行为研究
Spinal Cord. 2021 Apr;59(4):452-461. doi: 10.1038/s41393-020-00583-4. Epub 2020 Nov 17.
5
Maintaining hope after a disabling stroke: A longitudinal qualitative study of patients' experiences, views, information needs and approaches towards making treatment decisions.失能性中风后保持希望:一项关于患者体验、观点、信息需求以及制定治疗决策方法的纵向定性研究。
PLoS One. 2019 Sep 13;14(9):e0222500. doi: 10.1371/journal.pone.0222500. eCollection 2019.
6
Health Information-Seeking Behaviors of Family Caregivers: Analysis of the Health Information National Trends Survey.家庭照顾者的健康信息寻求行为:健康信息国家趋势调查分析
JMIR Aging. 2019 Jan 14;2(1):e11237. doi: 10.2196/11237.
7
Global, regional, and national burden of stroke, 1990-2016: a systematic analysis for the Global Burden of Disease Study 2016.全球、区域和国家卒中负担,1990-2016 年:2016 年全球疾病负担研究的系统分析。
Lancet Neurol. 2019 May;18(5):439-458. doi: 10.1016/S1474-4422(19)30034-1. Epub 2019 Mar 11.
8
The relationships between health anxiety, online health information seeking, and cyberchondria: Systematic review and meta-analysis.健康焦虑、在线健康信息搜索与网络疑病症之间的关系:系统评价和荟萃分析。
J Affect Disord. 2019 Feb 15;245:270-278. doi: 10.1016/j.jad.2018.11.037. Epub 2018 Nov 5.
9
Health-Seeking Behavior of Patients with Acute Coronary Syndrome and Their Family Caregivers.急性冠状动脉综合征患者及其家庭照顾者的求医行为
Prehosp Disaster Med. 2018 Dec;33(6):614-620. doi: 10.1017/S1049023X18001036. Epub 2018 Nov 5.
10
Stroke survivors' and informal caregivers' experiences of primary care and community healthcare services - A systematic review and meta-ethnography.中风幸存者及非正式照护者对初级保健和社区医疗服务的体验——一项系统评价与元民族志研究
PLoS One. 2018 Feb 21;13(2):e0192533. doi: 10.1371/journal.pone.0192533. eCollection 2018.