Noohi Esmat, Peyrovi Hamid, Imani Goghary Zahra, Kazemi Majid
Physiology Research Center, Department of Medical Surgical Nursing Education, Razi School of Nursing and Midwifery, Kerman University of Medical Sciences, Iran.
Department of Critical Care Nursing, School of Nursing and Midwifery, Iran University of Medical Sciences, Tehran, Iran.
Conscious Cogn. 2016 Apr;41:150-8. doi: 10.1016/j.concog.2016.02.015. Epub 2016 Mar 1.
A vegetative state (VS) is the probable result after brain damage. After VS patients are discharged from the hospital, the responsibility of caring of them is transferred to their families, which impacts a caregiver's physical and psychological health. Social support as a valuable resource reduces the negative effects of stressful events. This study aimed to explore the perception of social support among family caregivers of VS patients. This study is a part of a larger qualitative study which used the descriptive and qualitative method. Purposeful and theoretical sampling was done, and data was gathered through face-to-face, in-depth interviews. The four categories of "Family, a supporter in all aspects," "Beautiful emanation of the nurse's role," "Revitalization via empathy and companionship," and "Defects in support," were extracted. The primary concern of participants was receiving social support which can facilitate caregiving and coping with difficulties, but there are many shortcomings in supporting these caregivers.
植物人状态(VS)是脑损伤后的可能结果。VS患者出院后,照顾他们的责任就转移到了其家人身上,这会影响照顾者的身心健康。社会支持作为一种宝贵资源,可减少应激事件的负面影响。本研究旨在探讨VS患者家庭照顾者对社会支持的认知。本研究是一项更大规模定性研究的一部分,采用了描述性和定性方法。进行了有目的的理论抽样,并通过面对面的深入访谈收集数据。提取了“全方位支持者——家庭”“护士角色的美好体现”“通过同理心和陪伴实现重振”以及“支持中的缺陷”这四类。参与者最主要关心的是获得能促进照顾和应对困难的社会支持,但在支持这些照顾者方面存在许多不足。