School of Allied Health, Faculty of Education and Health Sciences & Health Research Institute, University of Limerick, Limerick, Ireland.
Graduate Entry Medical School (GEMS), Faculty of Education and Health Sciences & Health Research Institute, University of Limerick, Limerick, Ireland.
Disabil Rehabil. 2022 Jul;44(14):3440-3452. doi: 10.1080/09638288.2020.1863483. Epub 2020 Dec 28.
This study aimed to explore the perspectives of working-aged adults with post-stroke aphasia (PWA) towards what has or would help them in living well with aphasia (LWA). This paper reports the findings in relation to stroke care and its relevance for LWA.
This qualitative study was designed with input from a Public and Patient Involvement advisory group. We conducted in-depth, semi-structured interviews with 14 PWA. Data were analysed following principles of reflexive thematic analysis.
Support services and LWA spanned five themes: Inpatient care; Support in the community; Speech therapy; Mental health; and Aphasia education and training. Per the findings, all aspects of stroke care were affected and challenged by aphasia. Access to services and information was variable. PWA of working-age, their families and children need access to person-centred stroke care and information responsive to their changing needs at all stages of recovery. Healthcare workers must be equipped with aphasia competency.
The results highlight a need for equitable, transparent, responsive access to services, information and stroke liaison support. The findings extend knowledge of the importance of stroke care for supporting working-aged adults and their families to live well in the context of aphasia.Implications for rehabilitationThere is a need for equitable, transparent access to a responsive integrated pathway of stroke care to support living well with aphasia.People with aphasia post-stroke and their families need access to person-centred stroke care and information responsive to their changing needs at all stages of recovery.This includes flexible access to mental healthcare and speech and language therapy.In order to access relevant care, people with post-stroke aphasia need access to information and stroke liaison support.Training to improve aphasia competency is imperative for healthcare workers.
本研究旨在探讨成年脑卒中后失语症（PWA）患者对有助于他们良好生活的因素的看法（LWA）。本文报告了与卒中护理相关的发现及其对 LWA 的相关性。
本定性研究在公众和患者参与咨询小组的投入下进行。我们对 14 名 PWA 进行了深入的半结构化访谈。数据按照反思性主题分析的原则进行分析。
支持服务和 LWA 涵盖五个主题：住院护理；社区支持；言语治疗；心理健康；和失语症教育和培训。根据研究结果，卒中护理的各个方面都受到失语症的影响和挑战。获得服务和信息的机会各不相同。处于工作年龄的 PWA、他们的家人和孩子需要获得以患者为中心的卒中护理和信息，以满足他们在康复的所有阶段不断变化的需求。医疗保健工作者必须具备失语症能力。
结果强调了需要公平、透明、响应性地获得服务、信息和卒中联络支持。研究结果扩展了对卒中护理重要性的认识，以便在失语症背景下支持成年患者及其家庭的良好生活。
需要公平、透明、响应性的途径获得综合卒中护理，以支持良好的失语症生活。卒中后失语症患者及其家属需要获得以人为本的卒中护理和响应其在康复所有阶段不断变化的需求的信息。这包括灵活获得心理健康护理和言语和语言治疗。为了获得相关护理，卒中后失语症患者需要获得信息和卒中联络支持。提高失语症能力是医疗保健工作者的当务之急。
