Jug Rachel, Booth Adam L, Buckley Anne F, Newell Jordan, Kesterson Joshua, Gardner Jerad M, Ozcan Lerna, Liu Beiyu, Green Cynthia L, Joseph Lija, Cummings Thomas J
Departments of Pathology, Durham, NC.
Department of Pathology, University of Texas Medical Branch at Galveston.
Am J Clin Pathol. 2021 May 18;155(6):887-894. doi: 10.1093/ajcp/aqaa202.
The aim of this multisite quality improvement study was to evaluate patients' experiences with the patient-centered pathology (PCP) consultation program and to determine whether PCP enhanced their care experience.
Patients were invited to attend PCP consultations to review their pathology report and slides and have their questions answered by the pathologist privately, with the option to attend the appointment with family members or friends for support. A patient experience questionnaire (PEQ) was administered to patients, who participated voluntarily in the PCP, and survey data were collected and stored in REDCap. Statistical analysis was performed using SAS 9.4 (SAS Institute).
Sixty-seven patients (95.5% female) aged 18 to 84 years across 4 institutions completed the PEQ. Overall, 58% and 15.8% of patients had breast and brain tumors, respectively, and 59.7% of tumors were newly diagnosed. Most patients thought it was important for them to learn as much as they could about their health condition. However, the majority of patients reported some degree of difficulty learning about their health condition based on written information, despite 97% having completed high school and/or further education. The majority of patients rated their pathologist as "excellent" across communication metrics. Ultimately, 100% of respondents were satisfied, found their visits to be useful, and would recommend the PCP to other patients.
Patients found that personalized clinical encounters with pathologists improved their understanding of their health condition and their satisfaction with their care experience. Patients thought pathologists communicated respectfully, effectively, and empathetically.
这项多中心质量改进研究的目的是评估患者对以患者为中心的病理学（PCP）咨询项目的体验，并确定PCP是否提升了他们的护理体验。
邀请患者参加PCP咨询，以复查他们的病理报告和切片，并由病理学家私下回答他们的问题，患者也可以选择让家人或朋友陪同参加预约以获得支持。对自愿参加PCP的患者发放患者体验问卷（PEQ），收集调查数据并存储在REDCap中。使用SAS 9.4（SAS研究所）进行统计分析。
来自4个机构的67名年龄在18至84岁之间的患者（95.5%为女性）完成了PEQ。总体而言，分别有58%和15.8%的患者患有乳腺肿瘤和脑肿瘤，59.7%的肿瘤为新诊断病例。大多数患者认为尽可能多地了解自己的健康状况对他们很重要。然而，尽管97%的患者完成了高中和/或继续教育，但大多数患者表示基于书面信息了解自己的健康状况存在一定程度的困难。在沟通指标方面，大多数患者对他们的病理学家评价为“优秀”。最终，100%的受访者表示满意，认为他们的就诊很有用，并会向其他患者推荐PCP。
患者发现与病理学家进行个性化的临床接触提高了他们对自身健康状况的理解以及对护理体验的满意度。患者认为病理学家沟通时尊重他人、有效且富有同理心。
