Pathology and Laboratory Medicine, Ottawa Hospital, Ottawa, Ontario, Canada.
Department of Pathology and Laboratory Medicine, University of Ottawa, Ottawa, Ontario, Canada.
J Clin Pathol. 2020 Aug;73(8):454-455. doi: 10.1136/jclinpath-2019-206370. Epub 2020 Feb 27.
In many centres, patients now have access to their electronic medical record (EMR) and laboratory results, including pathology reports, are amongst the most frequently accessed pieces of information. The pathology report is an important but highly technical medical document that can be difficult for patient and clinicians alike to interpret. To improve communication and patient safety, pathologists are being called upon to play a more direct role in patient care. Novel approaches have been undertaken by pathologists to address this need, including the addition of patient-friendly summaries at the beginning of pathology reports and the development of patient education tools. MyPathologyReport.ca is a novel website exclusively providing pathology education to patients. It has been designed to help patients understand the language of pathology and to effectively navigate their pathology report. At present, the website includes over 150 diagnostic articles and over 125 pathology dictionary definitions. The diagnostic articles span all body sites and include a variety of malignant, benign and non-neoplastic conditions. Since its creation, this website has been visited over 14 000 times, with cancer-related diagnoses and definitions representing the most commonly accessed articles. This website has been embedded in patient accessible EMRs and shared through partnerships with patients, caregivers and their respective advocacy groups. Our next steps involve longitudinal assessment of MyPathologyReport.ca from non-medical community members, evaluation of patient satisfaction and understanding and further collaboration with hospitals and care-providers to increase patient access to this resource.
在许多中心,患者现在可以访问他们的电子病历(EMR),包括病理学报告在内的实验室结果是最常被访问的信息之一。病理学报告是一份重要但技术含量很高的医疗文件,患者和临床医生都可能难以解读。为了改善沟通和患者安全,病理学家被要求在患者护理中发挥更直接的作用。病理学家已经采取了一些新方法来满足这一需求,包括在病理学报告的开头添加对患者友好的摘要,以及开发患者教育工具。MyPathologyReport.ca 是一个专门为患者提供病理学教育的新网站。它旨在帮助患者理解病理学语言,并有效地浏览他们的病理学报告。目前,该网站包含超过 150 篇诊断文章和超过 125 篇病理学词典定义。诊断文章涵盖所有身体部位,包括各种恶性、良性和非肿瘤性疾病。自创建以来,该网站已被访问超过 14000 次,癌症相关诊断和定义是最常被访问的文章。该网站已嵌入患者可访问的 EMR 中,并通过与患者、护理人员及其各自的倡导团体的合作进行共享。我们的下一步是从非医疗社区成员那里对 MyPathologyReport.ca 进行纵向评估,评估患者的满意度和理解程度,并与医院和护理提供者进一步合作,增加患者对该资源的访问。