Suppr超能文献

伦理与电子健康记录:阿根廷电子健康记录整合系统的描述以及向以患者为中心理念转变的提议

Ethics and the Electronic Health Record: Description of An Integrating System of Electronic Health Records in Argentina and a Proposal to Shift Towards a Patient-Centered Conception.

作者信息

Verona Julián

机构信息

Central Laboratory, Hospital Dr. Felipe A. Fossati, Balcarce, Argentina.

Confederación Unificada Bioquímica de la República Argentina, CUBRA.

出版信息

EJIFCC. 2020 Nov 20;31(4):310-319. eCollection 2020 Nov.

Abstract

The Electronic Health Record (EHR) constitutes a complete information system useful for patient care, epidemiological studies and public health policies development. We describe the Integrating System of EHRs of the Autonomous City of Buenos Aires (CABA), established by Law 5669, of 2016. Although we consider the Integrating System of EHRs implemented by CABA very appropriate, we propose, first, that health services no longer store comprehensive EHRs. Instead, complete information would reside in one or several servers sheltered by civil society. Second, information would become integrated only when patients require it and grant access. The patient would now be in a position of strength (complete autonomy). Instead of asking for his data he would be asked for them. In this sense, the patient will have to exercise the emerging responsibility of reciprocity to the benefit of his own care and the care of others.

摘要

电子健康记录(EHR)构成了一个完整的信息系统,对患者护理、流行病学研究和公共卫生政策制定很有用。我们描述了根据2016年第5669号法律设立的布宜诺斯艾利斯自治市(CABA)电子健康记录整合系统。尽管我们认为CABA实施的电子健康记录整合系统非常合适,但我们首先提议,医疗服务机构不再存储完整的电子健康记录。相反,完整信息将存储在由民间社会保护的一个或多个服务器中。其次,只有当患者提出要求并授予访问权限时,信息才会被整合。患者现在将处于强势地位(完全自主)。不是向患者索要他的数据,而是患者被要求提供数据。从这个意义上说,患者将不得不履行新出现的互惠责任,以利于自己的护理和他人的护理。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/90e9/7745301/006c98f6fbf8/ejifcc-31-310-g001.jpg

文献AI研究员

20分钟写一篇综述,助力文献阅读效率提升50倍。

立即体验

用中文搜PubMed

大模型驱动的PubMed中文搜索引擎

马上搜索

文档翻译

学术文献翻译模型,支持多种主流文档格式。

立即体验