Department of Psychological & Brain Sciences, Boston University, Boston, MA.
Research, Evaluation & Social Policy, Canteen Australia, Sydney, Australia.
J Dev Behav Pediatr. 2021 May 1;42(4):331-339. doi: 10.1097/DBP.0000000000000902.
Serious childhood illnesses such as cancer affect all family members. Siblings experience strong emotions and disruptions to their routines as families reorganize to confront the disease and manage treatment. Addressing siblings' psychosocial needs is a standard of care in pediatric oncology, but siblings' needs are rarely met because of systematic barriers in our health care system. Thus, we aimed to re-envision sibling care. We used an appreciative inquiry approach to inform systematic screening of siblings' psychosocial risk and unmet needs as a first step toward providing appropriate support.
Sibling-focused researchers, clinicians, policymakers, advocates, and families of youth with cancer (N = 29) convened for a 2-day community stakeholder-centered international summit to create a vision for standardizing and optimizing sibling-focused psychosocial screening and assessment as a pathway to care, including crafting a research agenda and articulating best clinical practices.
Summit attendees created a detailed framework for best practices in universal sibling psychosocial screening and pathways to support. The framework emphasizes links between hospital- and community-based care. It highlights the need to prepare systems to feasibly and effectively attend to siblings' needs and recommends incorporating siblings into family-based psychosocial screening at cancer diagnosis, systematically conducting sibling-focused psychosocial screening during and after cancer treatment, and connecting siblings with community-based resources.
A systematic approach to sibling psychosocial services expands the idea of family-centered care to include siblings and ensures that siblings' needs are adequately recognized and met. This framework was created in the context of cancer but is applicable across illness groups.
严重的儿童疾病，如癌症，会影响所有家庭成员。当家庭为应对疾病和管理治疗而重新组织时，兄弟姐妹会经历强烈的情绪和日常生活的中断。满足兄弟姐妹的心理社会需求是儿科肿瘤学的护理标准，但由于我们医疗保健系统中的系统性障碍，兄弟姐妹的需求很少得到满足。因此，我们旨在重新构想对兄弟姐妹的关怀。我们使用欣赏式探询方法，对兄弟姐妹的心理社会风险和未满足的需求进行系统筛查，作为提供适当支持的第一步。
以兄弟姐妹为重点的研究人员、临床医生、政策制定者、倡导者和患有癌症的青年的家庭（N=29）聚集在一起，参加为期两天的以社区利益相关者为中心的国际峰会，为标准化和优化以兄弟姐妹为重点的心理社会筛查和评估制定标准，作为一种关怀途径，包括制定研究议程和阐明最佳临床实践。
峰会与会者为普遍的兄弟姐妹心理社会筛查和支持途径制定了最佳实践的详细框架。该框架强调了医院和社区护理之间的联系。它强调了需要准备系统，以便能够有效地满足兄弟姐妹的需求，并建议在癌症诊断时将兄弟姐妹纳入家庭为基础的心理社会筛查中，在癌症治疗期间和之后系统地进行以兄弟姐妹为重点的心理社会筛查，并将兄弟姐妹与社区资源联系起来。
系统的兄弟姐妹心理服务方法将以家庭为中心的护理理念扩展到包括兄弟姐妹，并确保充分认识和满足兄弟姐妹的需求。该框架是在癌症背景下创建的，但适用于所有疾病群体。
