Long Kristin A, Davis Kathryn A, Pariseau Emily, Muriel Anna C, Kazak Anne E, Alderfer Melissa A
Boston University, Boston, Massachusetts, USA.
Dana Farber Cancer Institute, Boston, Massachusetts, USA.
Psychooncology. 2022 Oct;31(10):1774-1781. doi: 10.1002/pon.6024. Epub 2022 Sep 4.
Psychosocial screening can facilitate the identification of families who have difficulty adjusting to and managing serious pediatric illness. Despite siblings' roles within the family and increased psychosocial risk, a systematic approach to screening siblings of youth with cancer remains rare. One barrier to systematic sibling screening is the lack of a validated screener. We aimed to establish initial validity of the new parent-reported Psychosocial Assessment Tool (PAT) Sibling Modules for siblings ages 0-2, 3-4, 5-9, and 10+.
Families (N = 64) completed the PAT Sibling Modules and the Strengths and Difficulties Questionnaire (SDQ) regarding siblings' functioning at cancer diagnosis (13-23 items, depending on age version) and 6 months later (17-42 items). Cross-sectional and longitudinal analyses examined internal consistency and convergent and predictive validity of the PAT Sibling Modules.
Baseline and follow-up versions of the modules have strong internal consistency (Kuder-Richardson 20 range: 0.82-0.93) and convergent validity at diagnosis (r-values ≥0.4, p-values <0.01) and follow-up (r-values >0.4, p-values <0.05). Predictive validity was supported by significant correlations between baseline PAT Sibling Module scores and 6 month SDQ scores (r = 0.86, p < 0.001).
Findings provide initial evidence that the PAT Sibling Modules are valid measures of sibling psychosocial risk. Availability of a validated screener is a first step toward addressing siblings' unmet psychosocial needs.
心理社会筛查有助于识别那些在适应和管理儿童重症方面存在困难的家庭。尽管兄弟姐妹在家庭中扮演着重要角色,且心理社会风险增加,但针对癌症青少年患者兄弟姐妹进行系统筛查的方法仍然很少见。系统的兄弟姐妹筛查的一个障碍是缺乏经过验证的筛查工具。我们旨在确定新的家长报告的心理社会评估工具(PAT)兄弟姐妹模块对于0 - 2岁、3 - 4岁、5 - 9岁和10岁以上兄弟姐妹的初步有效性。
64个家庭完成了PAT兄弟姐妹模块以及关于兄弟姐妹在癌症诊断时(根据年龄版本,13 - 23项)和6个月后(17 - 42项)功能的优势与困难问卷(SDQ)。横断面和纵向分析检验了PAT兄弟姐妹模块的内部一致性、收敛效度和预测效度。
模块的基线和随访版本具有很强的内部一致性(库德 - 理查森20系数范围:0.82 - 0.93),在诊断时(r值≥0.4,p值<0.01)和随访时(r值>0.4,p值<0.05)具有收敛效度。基线PAT兄弟姐妹模块得分与6个月SDQ得分之间的显著相关性支持了预测效度(r = 0.86,p < 0.001)。
研究结果提供了初步证据,表明PAT兄弟姐妹模块是衡量兄弟姐妹心理社会风险的有效指标。拥有经过验证的筛查工具是满足兄弟姐妹未得到满足的心理社会需求的第一步。