Colorectal Surgery, Jewish General Hospital, Montreal, Quebec, Canada.
Epidemiology, Biostatistics, Occupational Health, and Public Health, McGill University, Montreal, Quebec, Canada.
Colorectal Dis. 2021 Feb;23(2):376-383. doi: 10.1111/codi.15514. Epub 2021 Jan 28.
Patients are not well informed about sexual dysfunction after rectal cancer surgery and often turn to the Internet for information. The purpose of this study was to assess online information for patients on sexual dysfunction after rectal cancer surgery.
An online search of Google, Yahoo and Bing was performed using specific (e.g., rectal cancer surgery and vaginal pain) and general (e.g., rectal cancer surgery and sex) search terms. Inclusion criteria were websites in English, designed for patients, and including content regarding sexual dysfunction after rectal cancer surgery. Websites were assessed for readability (nine standardized tests), quality (DISCERN tool), suitability (Suitability Assessment of Materials tool), and content.
Of 5040 websites identified, 99 unique websites met inclusion criteria. Three (3%) websites fulfilled the American Medical Association recommendation of a 6th-grade reading level. Using the DISCERN instrument, two (2%) websites were assigned good/excellent quality, nineteen (19%) referenced their sources of information, and thirty-one (31%) fully discussed the impact of sexual dysfunction on quality of life. Using the SAM instrument, three (3%) websites were classified as highly suitable for rectal cancer patients, sixty-five (66%) were adequate, and thirty-one (31%) were inadequate. With regards to content, nine (9%) websites fully discussed the impact of sexual dysfunction on patients partners and fifty-one (52%) websites did not cover prognosis.
Online health information available to patients on sexual dysfunction after rectal cancer surgery is suboptimal. Websites are not suitable, lack important content, and are written at too complex a reading level for patients.
直肠癌手术后患者对性功能障碍的了解并不充分,他们经常上网寻求信息。本研究旨在评估直肠癌手术后患者在互联网上获取性功能障碍信息的情况。
使用特定(如直肠癌手术和阴道疼痛)和一般(如直肠癌手术和性)搜索词,在 Google、Yahoo 和 Bing 上进行在线搜索。纳入标准为英文网站、面向患者、包含直肠癌手术后性功能障碍内容的网站。评估网站的可读性(9 项标准化测试)、质量(DISCERN 工具)、适用性(Suitability Assessment of Materials 工具)和内容。
在 5040 个网站中,有 99 个独特的网站符合纳入标准。其中 3 个(3%)网站符合美国医学协会推荐的 6 年级阅读水平。使用 DISCERN 工具,有 2 个(2%)网站被评为质量良好/优秀,19 个(19%)网站引用了其信息来源,31 个(31%)网站充分讨论了性功能障碍对生活质量的影响。使用 SAM 工具,有 3 个(3%)网站被归类为高度适合直肠癌患者,65 个(66%)网站是合适的,31 个(31%)网站是不适合的。就内容而言,有 9 个(9%)网站充分讨论了性功能障碍对患者伴侣的影响,有 51 个(52%)网站没有涉及预后。
直肠癌手术后患者获取性功能障碍相关信息的在线健康信息质量不理想。这些网站不适合患者,缺乏重要内容,且阅读水平对患者来说过于复杂。