Clinical Analytics, Seattle Children's Hospital, Seattle, Washington, USA.
Patient and Family Experience, Seattle Children's Hospital, Seattle, Washington, USA.
J Am Med Inform Assoc. 2021 Mar 1;28(3):650-652. doi: 10.1093/jamia/ocaa307.
There is little debate about the importance of ethics in health care, and clearly defined rules, regulations, and oaths help ensure patients' trust in the care they receive. However, standards are not as well established for the data professions within health care, even though the responsibility to treat patients in an ethical way extends to the data collected about them. Increasingly, data scientists, analysts, and engineers are becoming fiduciarily responsible for patient safety, treatment, and outcomes, and will require training and tools to meet this responsibility. We developed a data ethics checklist that enables users to consider the possible ethical issues that arise from the development and use of data products. The combination of ethics training for data professionals, a data ethics checklist as part of project management, and a data ethics committee holds potential for providing a framework to initiate dialogues about data ethics and can serve as an ethical touchstone for rapid use within typical analytic workflows, and we recommend the use of this or equivalent tools in deploying new data products in hospitals.
医疗保健中伦理的重要性几乎没有争议，明确的规则、法规和誓言有助于确保患者对所接受的护理的信任。然而，即使有责任以合乎道德的方式对待患者，包括收集有关他们的数据，医疗保健领域的数据专业人员的标准却没有那么完善。数据科学家、分析师和工程师越来越多地对患者的安全、治疗和结果承担着受托责任，并且需要培训和工具来履行这一责任。我们开发了一个数据伦理检查表，使用户能够考虑从数据产品的开发和使用中可能出现的伦理问题。将数据专业人员的伦理培训、项目管理中的数据伦理检查表以及数据伦理委员会相结合，有可能为发起有关数据伦理的对话提供一个框架，并可以作为在典型分析工作流程中快速使用的道德基准，我们建议在医院部署新的数据产品时使用此检查表或等效工具。
