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谷歌的“夜莺计划”凸显了数据科学伦理审查的必要性。

Google's Project Nightingale highlights the necessity of data science ethics review.

作者信息

Schneble Christophe Olivier, Elger Bernice Simone, Shaw David Martin

机构信息

Institute of Biomedical Ethics, University of Basel, Basel, Switzerland.

Faculty of Medicine, University Center of Legal Medicine, University of Geneva, Geneva, Switzerland.

出版信息

EMBO Mol Med. 2020 Mar 6;12(3):e12053. doi: 10.15252/emmm.202012053. Epub 2020 Feb 17.

Abstract

On November 14 last year, the British Guardian published an account from an anonymous whistleblower at Google, accusing the company of misconduct in regard to handling sensitive health data. The whistleblower works for Project Nightingale, an attempt by Google to get into the lucrative US healthcare market, by storing and processing the personal medical data of up to 50 million customers of Ascension, one of America's largest healthcare providers. As the Wall Street Journal had already reported 3 days earlier, and as the whistleblower confirmed, neither was the data anonymized when transmitted from Ascension nor were patients or their doctors notified, let alone asked for consent to sharing their data with Google (Copeland, 2019; Pilkington, 2019). As a result, Google employees had full access to non-anonymous patient health data. Google Health chief David Feinberg commented that all Google employees involved had gone through medical ethics training and were approved by Ascension (Feinberg, 2019).

摘要

去年11月14日,英国《卫报》发表了谷歌一名匿名举报者的陈述,指控该公司在处理敏感健康数据方面存在不当行为。该举报人在“夜莺计划”工作,这是谷歌试图打入利润丰厚的美国医疗保健市场的尝试,通过存储和处理美国最大的医疗保健提供商之一阿森松医疗集团多达5000万客户的个人医疗数据。正如《华尔街日报》三天前已报道的,以及举报人所证实的,数据从阿森松医疗集团传输时既未匿名,也未通知患者或其医生,更不用说征求他们同意与谷歌共享数据了(科普兰,2019;皮尔金顿,2019)。结果,谷歌员工可以完全访问未匿名的患者健康数据。谷歌健康部门负责人大卫·范伯格评论说,所有涉及的谷歌员工都接受了医学伦理培训,并得到了阿森松医疗集团的批准(范伯格,2019)。

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