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以患者为中心的银屑病和荨麻疹管理:在考虑患者和医生环境时,我们是否忽视了网络成瘾问题?

People-centered care for psoriasis and urticaria: Are we overlooking Internet addiction while only considering patients and physician settings?

机构信息

Department of Dermatology and Allergy, School of Medicine, Technical University of Munich, Munich, Germany.

Department of Medical Informatics, Biometry and Epidemiology (IBE), Ludwig-Maximilians-University Munich, Munich, Germany.

出版信息

J Dermatol. 2021 Jun;48(6):825-834. doi: 10.1111/1346-8138.15740. Epub 2021 Jan 6.

Abstract

Psoriasis and chronic urticaria (CU) are chronic skin diseases with a high impact on individuals' life and mental health. Some studies indicate a high prevalence of Internet addiction and many affected individuals seem not to utilize healthcare, but rather search for health-related information online. The aims of the study were to assess Internet addiction as a potential comorbidity in both diseases as well as identify differences in healthcare utilization between individuals with psoriasis and CU. This cross-sectional study is based on self-reported data from individuals with psoriasis and CU living throughout Germany using the framework of an online survey from 12/2018 to 01/2019. Advertisements on Google and Facebook were used to address Internet users who searched online for information on psoriasis or CU. The study questionnaire comprised questions on demographics, current contact with physicians, and disease history as well as validated screening tools for well-being and Internet addiction. Overall, 1686 participants (74.0% female, 38.5% psoriasis) with a mean age of 36.9 ± 12.9 years were analyzed. Participants with CU were more likely female (89.2% vs 49.8%, P < 0.001) and not in medical care compared to participants with psoriasis (60.3% vs 45.9%, P < 0.001). Sixteen percent of the participants overall were screened positive for Internet addiction. Furthermore, not utilizing medical care showed a significant association with being screened positive for Internet addiction in participants with CU (adjusted odds ratio [aOR] = 1.49, 95% confidence interval [CI] 1.10-2.02), but not in those with psoriasis. The study revealed a high proportion of affected individuals not being in medical care and a high prevalence of Internet addiction, with individuals with CU not utilizing medical resources having a higher chance of being screened positive for Internet addiction. This underlines the approach of people-centered care and highlights its importance for further research.

摘要

银屑病和慢性荨麻疹(CU)是两种慢性皮肤病,对个体的生活和心理健康有很大影响。一些研究表明,互联网成瘾的发病率较高,许多受影响的个体似乎没有利用医疗保健,而是在网上搜索健康相关信息。本研究的目的是评估这两种疾病中互联网成瘾的潜在共病性,并确定银屑病和 CU 患者之间医疗保健利用的差异。这是一项基于自我报告数据的横断面研究,对象为居住在德国各地的银屑病和 CU 患者,使用的是 2018 年 12 月至 2019 年 1 月期间在线调查的框架。通过在谷歌和 Facebook 上投放广告,向在线搜索银屑病或 CU 信息的互联网用户发送调查问卷。研究问卷包括人口统计学信息、与医生的当前联系以及疾病史,以及用于评估幸福感和互联网成瘾的有效筛查工具。共有 1686 名参与者(74.0%为女性,38.5%为银屑病)参与了本研究,他们的平均年龄为 36.9±12.9 岁。与银屑病患者相比,CU 患者中女性占比更高(89.2% vs 49.8%,P<0.001),且未接受医疗护理的患者比例更高(60.3% vs 45.9%,P<0.001)。总体而言,16%的参与者被筛查为互联网成瘾。此外,在 CU 患者中,未接受医疗护理与互联网成瘾筛查阳性显著相关(调整后的优势比[aOR] 1.49,95%置信区间[CI] 1.10-2.02),但在银屑病患者中未发现这种关联。该研究显示,未接受医疗护理的患者比例较高,且互联网成瘾的发病率较高,未利用医疗资源的 CU 患者更有可能被筛查为互联网成瘾。这凸显了以人为本的医疗护理方法的重要性,也强调了其在进一步研究中的重要性。

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