Gorawara-Bhat Rita, Graupner Jeffrey, Molony Jason, Thompson Katherine
Department of Medicine, The University of Chicago, IL, USA.
SAGE Open Nurs. 2019 Apr 24;5:2377960819844670. doi: 10.1177/2377960819844670. eCollection 2019 Jan-Dec.
Little is known about informal caregivers' challenges in medically underserved communities. This qualitative study explores their perceptions/experiences of caregiving in a medically underserved community in Midwest United States. Two focus groups ( = 12) were conducted and themes were extracted and analyzed. Theme 1 included perceived barriers/unmet needs; most prevalent of which were lack of informational resources and support groups. A second unsolicited and unanticipated theme highlighted how caregivers constructed meaning through reappraising challenges to create enriching experiences for themselves, reinforcing their evolving dyadic relationship with care-recipient. Challenging and enriching aspects of caregiving coexisted and were rooted in caregiver-care-recipient dyad. Caregivers used meaning-making as a coping strategy for challenges. Prior research corroborates caregivers' challenges and meaning-making; this study contributes by delineating how both become interrelated. Policy makers can (a) alleviate challenges by increasing informational resources and support groups and (b) provide training to optimize caregivers' meaning-making, thus enhancing their positive experiences.
对于医疗服务不足社区中非正式照料者所面临的挑战,人们了解甚少。这项定性研究探讨了他们在美国中西部一个医疗服务不足社区中的照料观念/经历。研究开展了两个焦点小组(共12人),并提取和分析了相关主题。主题1包括感知到的障碍/未满足的需求;其中最普遍的是缺乏信息资源和支持小组。另一个自发出现且未预料到的主题强调了照料者如何通过重新评估挑战来构建意义,从而为自己创造丰富的经历,强化他们与受照料者不断发展的二元关系。照料的挑战性和丰富性并存,且根源在于照料者与受照料者的二元关系。照料者将意义构建作为应对挑战的策略。先前的研究证实了照料者面临的挑战和意义构建;本研究通过阐述两者如何相互关联做出了贡献。政策制定者可以(a)通过增加信息资源和支持小组来缓解挑战,以及(b)提供培训以优化照料者的意义构建,从而增强他们的积极体验。