Narrat Inq Bioeth. 2020;10(2):125-132. doi: 10.1353/nib.2020.0041.
This commentary focuses on 12 narratives written by caregivers of people living with Alzheimer's Disease and other types of dementia. While each narrative is distinctive and particular telling, common themes woven throughout the narratives include: embarking on a journey; I changed and they changed; feelings elicited; the hardest and best parts; understandings and acceptance; intersections; and what the future holds. This commentary shares these common themes and how they play out in the lives of people caring for loved ones with dementia. The last section connects the narrative themes to bioethical inquiry, with a focus on discerning moral boundaries. The boundaries touched on relate to justice within families, caregiver self-respect, and the persistence of persons and personal relationships over time.
本评论集中讨论了 12 篇由阿尔茨海默病和其他类型痴呆症患者的护理者撰写的叙述。虽然每一篇叙述都是独特而特别的讲述，但贯穿叙述的共同主题包括：踏上一段旅程；我变了，他们也变了；引起的感受；最困难和最好的部分；理解和接受；交叉点；以及未来的发展方向。本评论分享了这些共同主题，以及它们在照顾痴呆症患者的亲人的生活中的表现。最后一部分将叙述主题与生物伦理探究联系起来，重点是辨别道德界限。所涉及的界限与家庭内部的正义、护理者的自我尊重以及个人和人际关系随着时间的推移的持久性有关。
