Colorado State University, Fort Collins, CO.
Home Health Care Serv Q. 2021 Apr-Jun;40(2):136-147. doi: 10.1080/01621424.2021.1907266. Epub 2021 Apr 2.
Sixteen million people in the United States are unpaid caregivers to people with Alzheimer's or dementia. Although caregiver investment is associated with personal and relational benefits, there are also emotional, mental, relational, and physical costs. This study explores online well-being advice for nonprofessional caregivers of people with Alzheimer's and dementia, resulting in 332 online resources that offer informational support for nonprofessional caregivers. Although competent communication directly impacts the well-being of caregiving relationships, only 39 of these texts offered advice related to communication strategies. Thematic analysis of these 39 sources resulted in 1,024 discrete pieces of caregiver advice related to three overarching themes: , and . We examine the theme to understand informational support available to caregivers. These self-care advice themes reveal a need for intentional focus on the home health quality of nonprofessional caregivers about ways that communication impacts their everyday lives.
美国有 1600 万人无偿照顾患有阿尔茨海默病或痴呆症的人。尽管照顾者的投入与个人和人际关系的好处有关，但也存在情感、心理、人际关系和身体上的代价。本研究探讨了针对非专业阿尔茨海默病和痴呆症患者照顾者的在线幸福感建议，共产生了 332 个在线资源，为非专业照顾者提供信息支持。尽管有效的沟通直接影响着照顾关系的幸福感，但这些文本中只有 39 个提供了与沟通策略相关的建议。对这 39 个来源的主题分析产生了 1024 条与三个总体主题相关的护理建议：自我保健、情绪管理和沟通。我们研究主题，以了解可向护理人员提供的信息支持。这些自我保健建议主题揭示了需要关注非专业护理人员的家庭健康质量，了解沟通如何影响他们的日常生活。
