Virginia Commonwealth University, Richmond, VA, USA.
Health Educ Behav. 2021 Oct;48(5):567-574. doi: 10.1177/1090198120985450. Epub 2021 Jan 10.
Little is known about how triple negative breast cancer (TNBC) is discussed on the visual social media platform, Instagram. A greater understanding of the experiences of TNBC survivors that are documented on this platform may inform us of how this group of survivors cope with this rare, but aggressive form of breast cancer. This study analyzed a random sample ( = 501) of Instagram posts using the hashtag #triplenegativebreastcancer. Using a quantitative content analysis, posts were coded for the presence of health belief model constructs as well as the presence of treatment-related experiences, social support, and hereditary breast cancer genetic mutations (BRCA 1/2). Our findings suggest that health organizations and agencies are not utilizing Instagram as a conduit of health communications about TNBC to reach individuals worldwide. This article provides insights into potential strategies that can be used by these entities to promote user engagement with posts about TNBC, such as utilizing health messaging that is episodic in nature, uses supportive and encouraging words, and provides information about chemotherapy.
关于三阴性乳腺癌 (TNBC) 在视觉社交媒体平台 Instagram 上的讨论情况，我们知之甚少。如果能更深入地了解在这个平台上记录的 TNBC 幸存者的经历，我们可能会了解到这群幸存者是如何应对这种罕见但侵袭性很强的乳腺癌的。本研究使用 #triplenegativebreastcancer 这一标签，对 Instagram 上的一个随机样本（=501）帖子进行了分析。通过定量内容分析，对帖子是否存在健康信念模型结构以及治疗相关经历、社会支持和遗传性乳腺癌基因突变 (BRCA1/2) 进行了编码。我们的研究结果表明，健康组织和机构并未将 Instagram 用作向全球个人传播有关 TNBC 的健康信息的渠道。本文提供了这些实体可以用来促进用户参与有关 TNBC 帖子的潜在策略的见解，例如使用具有间歇性、使用支持性和鼓励性词语并提供有关化疗信息的健康信息。
