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术前大肠癌手术患者小组咨询——一种新的患者教育方法的探索性研究。

Preoperative Group Consultation Prior to Surgery for Colorectal Cancer-an Explorative Study of a New Patient Education Method.

机构信息

Department of Surgery, SSORG - Scandinavian Surgical Outcomes Research Group, Institute of Clinical Sciences, Sahlgrenska Academy, University of Gothenburg, Gothenburg, Sweden.

Department of Surgery, Helsingborg Hospital, Helsingborg, Sweden.

出版信息

J Cancer Educ. 2022 Oct;37(5):1304-1311. doi: 10.1007/s13187-020-01951-7. Epub 2021 Jan 14.

DOI:10.1007/s13187-020-01951-7
PMID:33447870
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC9550721/
Abstract

Patients with colorectal cancer may lack information about the disease and treatment. In 2017, a group consultation before start of surgery was introduced at a university hospital in western Sweden to inform about the disease, treatment, and ongoing scientific studies. The primary aim of this study was to explore the experience of the patients attending the group consultation. Based on semi-structured interviews with patients with colorectal cancer, a questionnaire was constructed and administered to patients, both those attending and those not attending the group consultation. In total, 124 patients were included and the response rate was 86%. A majority of patients attending the group consultation would recommend it to someone else with the same illness. Of the patients attending the group consultation, 81% (30/37) patients agreed, fully or partially, that attending the group consultation had increased their sense of control and 89% (33/37) that the information they received at the group consultation increased their feeling of participation in the treatment. Preoperative group consultation is a feasible modality for informing and discussing the upcoming treatment for colorectal cancer with the patients, and the patients who attended the group setting appreciated it. Attending the group consultation increased the patients' feeling of active participation in their treatment and their sense of control, which could possibly both improve their experience of their illness and facilitate recovery. CLINICALTRIALS.GOV IDENTIFIER: NCT03888313.

摘要

结直肠癌患者可能缺乏有关疾病和治疗的信息。2017 年,瑞典西部一所大学医院引入了术前小组咨询,以提供有关疾病、治疗和正在进行的科学研究的信息。本研究的主要目的是探讨参加小组咨询的患者的体验。基于对结直肠癌患者的半结构化访谈,构建了一份问卷,并分发给参加和未参加小组咨询的患者。共纳入 124 例患者,应答率为 86%。大多数参加小组咨询的患者会向其他患有相同疾病的人推荐它。在参加小组咨询的患者中,81%(30/37)的患者完全或部分同意参加小组咨询增加了他们的控制感,89%(33/37)的患者认为他们在小组咨询中获得的信息增加了他们参与治疗的感觉。术前小组咨询是一种可行的方式,可以与患者就即将进行的结直肠癌治疗进行告知和讨论,参加小组的患者对此表示赞赏。参加小组咨询增加了患者对治疗的积极参与感和控制感,这可能会改善他们的疾病体验并促进康复。CLINICALTRIALS.GOV 标识符:NCT03888313。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/ef90/9550721/5a3a26eb3e49/13187_2020_1951_Fig2_HTML.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/ef90/9550721/931dbe9ae17b/13187_2020_1951_Fig1_HTML.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/ef90/9550721/5a3a26eb3e49/13187_2020_1951_Fig2_HTML.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/ef90/9550721/931dbe9ae17b/13187_2020_1951_Fig1_HTML.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/ef90/9550721/5a3a26eb3e49/13187_2020_1951_Fig2_HTML.jpg

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PROCESS AND SYSTEMS: A systems approach to embedding group consultations in the NHS.流程与系统:一种将团体咨询融入英国国家医疗服务体系(NHS)的系统方法。
Future Healthc J. 2019 Feb;6(1):8-16. doi: 10.7861/futurehosp.6-1-8.
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Fear and forget: how anxiety impacts information recall in newly diagnosed cancer patients visiting a fast-track clinic.
恐惧与遗忘:焦虑如何影响快速通道诊所新诊断癌症患者的信息回忆。
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Patients with rectal cancer are satisfied with in-hospital communication despite insufficient information regarding treatment alternatives and potential side-effects.直肠癌患者对住院期间的沟通感到满意,尽管他们对治疗选择和潜在副作用的信息了解不足。
Acta Oncol. 2018 Oct;57(10):1311-1317. doi: 10.1080/0284186X.2018.1484158. Epub 2018 Jul 10.
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A systematic review of the supportive care needs of people living with and beyond cancer of the colon and/or rectum.对结肠癌和/或直肠癌患者及其康复期患者支持性护理需求的系统评价。
Eur J Oncol Nurs. 2017 Aug;29:60-70. doi: 10.1016/j.ejon.2017.05.004. Epub 2017 May 30.
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EQ-5D and the EuroQol Group: Past, Present and Future.EQ-5D与欧洲生活质量小组:过去、现在与未来。
Appl Health Econ Health Policy. 2017 Apr;15(2):127-137. doi: 10.1007/s40258-017-0310-5.
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Patients' Perception of Information and Health-Related Quality of Life 1 Month After Discharge for Colorectal Cancer Surgery.结直肠癌手术后出院1个月患者对信息的认知及与健康相关的生活质量
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