Utsjoki Health Care Centre, Utsjoki, Finland.
University of Oulu, P.O. Box 7300, 90014, Oulu, Finland.
Ambio. 2021 Jun;50(6):1222-1236. doi: 10.1007/s13280-020-01459-w. Epub 2021 Jan 16.
This study examines the perspectives of Sami community members and university researchers regarding the ethical considerations for engagement in Community-Based Participatory Research (CBPR) with Sami communities in northern Finland. Key informant interviews were conducted with Sami people from Finland who were exposed to or participated in research in their communities as well as with researchers who have conducted research with the Sami in Finland across diverse topics. Five themes were identified: establishing trust, research preparation, research comprehension, research ethics, and inclusion in research. The differences in participant perspectives were compared based on their community versus researcher roles. Our findings emphasize the need for (1) strategies to develop and maintain trust between Sami communities and researchers; (2) methods to bridge concepts of bias projected onto Sami communities and researchers by the others' differing world views and beliefs about research; and (3) increased education in community-engaged methods for social and natural scientists working with Sami communities. This study supports the need for the development of formalized ethical protocols for conducting community-based engaged research with and for Sami people in Finland that ensure mutually beneficial research for all involved.
本研究考察了萨米社区成员和大学研究人员对在芬兰北部与萨米社区开展基于社区的参与式研究（CBPR）的伦理考虑的看法。对来自芬兰的接触过或参与过社区研究的萨米人以及在芬兰从事过各种主题研究的萨米研究人员进行了重点信息访谈。确定了五个主题：建立信任、研究准备、研究理解、研究伦理和研究参与。根据参与者的社区与研究人员角色的不同，比较了他们观点的差异。我们的研究结果强调需要采取以下策略：(1) 制定和维护萨米社区与研究人员之间的信任的策略；(2) 弥合萨米社区和研究人员之间因世界观和对研究的信念不同而投射出的偏见观念的方法；(3) 增加从事与萨米社区合作的社会和自然科学家的社区参与方法的教育。本研究支持为与芬兰的萨米人民开展基于社区的参与式研究制定正式的伦理协议的必要性，以确保所有相关方都能从中受益。
