Suppr超能文献

患者咨询委员会在健康研究中的作用:来自加拿大两个省级委员会的经验教训。

The Role of Patient Advisory Councils in Health Research: Lessons From Two Provincial Councils in Canada.

作者信息

Warren Mike, Leamon Toni, Hall Amanda, Twells Laurie, Street Catherine, Stordy Allan, Majumdar Kakali, Breault Lorraine, Fiest Kirsten, Rasiah Jananee, Santana Maria, Etchegary Holly

机构信息

NL Support Unit, Newfoundland and Labrador, Canada.

NL Support Unit and Primary Healthcare Research Unit, Memorial University, St. John's, Newfoundland and Labrador, Canada.

出版信息

J Patient Exp. 2020 Dec;7(6):898-905. doi: 10.1177/2374373520909598. Epub 2020 Mar 23.

Abstract

This article describes two patient advisory councils (PACs) in Canada in order to contribute to the limited evidence base on how they might facilitate patient engagement in health research. Specifically, members of PACs from Newfoundland and Labrador and Alberta describe their councils' governance structure, primary functions, creation and composition, and recount specific research-related activities with which they have been involved. Key challenges of these councils and facilitators of their use are also presented. Finally, members from both councils recount lessons learned and offer suggestions for others interested in advisory councils as a mechanism for patient engagement in any health research project. Members believe patient engagement can result in better quality research and encourage decision makers and researchers to utilize patients' valuable input to inform health system changes and drive priorities at a policy level.

摘要

本文介绍了加拿大的两个患者咨询委员会(PACs),以补充关于它们如何促进患者参与健康研究的有限证据基础。具体而言,来自纽芬兰与拉布拉多省以及艾伯塔省的PACs成员描述了其委员会的治理结构、主要职能、创建与组成,并讲述了他们参与的具体研究相关活动。还介绍了这些委员会面临的关键挑战及其使用的促进因素。最后,两个委员会的成员都讲述了经验教训,并为那些对咨询委员会作为患者参与任何健康研究项目的一种机制感兴趣的人提供了建议。成员们认为,患者参与能够带来质量更高的研究,并鼓励决策者和研究人员利用患者的宝贵意见,为卫生系统变革提供信息,并在政策层面推动工作重点。

相似文献

7
Success of Patient and Family Advisory Councils: The Importance of Metrics.患者及家属咨询委员会的成功:指标的重要性。
J Patient Exp. 2023 Apr 10;10:23743735231167972. doi: 10.1177/23743735231167972. eCollection 2023.
10
Risk management frameworks for human health and environmental risks.人类健康与环境风险的风险管理框架。
J Toxicol Environ Health B Crit Rev. 2003 Nov-Dec;6(6):569-720. doi: 10.1080/10937400390208608.

引用本文的文献

1
Understanding Patient Perspectives in Treatment and Management of Care in Asthma.了解患者在哮喘治疗与护理管理中的观点。
Patient Prefer Adherence. 2025 Aug 9;19:2353-2361. doi: 10.2147/PPA.S522436. eCollection 2025.
4
Use of Hospital Patient and Family Advisory Councils: A Scoping Study.医院患者及家属咨询委员会的应用:一项范围界定研究。
J Patient Exp. 2025 Feb 9;12:23743735251316995. doi: 10.1177/23743735251316995. eCollection 2025.

本文引用的文献

2
Unpacking the black box of improvement.剖析改进的黑匣子。
Int J Qual Health Care. 2018 Apr 20;30(suppl_1):15-19. doi: 10.1093/intqhc/mzy009.
8
Emerging Guidelines for Patient Engagement in Research.患者参与研究的新兴指南。
Value Health. 2017 Mar;20(3):481-486. doi: 10.1016/j.jval.2016.10.003. Epub 2016 Nov 17.

文献检索

告别复杂PubMed语法,用中文像聊天一样搜索,搜遍4000万医学文献。AI智能推荐,让科研检索更轻松。

立即免费搜索

文件翻译

保留排版,准确专业,支持PDF/Word/PPT等文件格式,支持 12+语言互译。

免费翻译文档

深度研究

AI帮你快速写综述,25分钟生成高质量综述,智能提取关键信息,辅助科研写作。

立即免费体验