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在一个心理健康伦理研究小组中建立同行咨询委员会——挑战、益处、促进因素及经验教训。

Establishing a peer advisory board in a mental health ethics research group - challenges, benefits, facilitators and lessons learned.

作者信息

Faissner Mirjam, Braun Esther, Efkemann Simone Agnes, Gaillard Anne-Sophie, Haferkemper Iris, Hempeler Christin, Heuer Imke, Lux Ursula, Potthoff Sarah, Scholten Matthé, Spiegel Sylvia, Stefaniak Christina, Thesing Madeleine, Werning Anna, Gather Jakov

机构信息

Institute of the History of Medicine and Ethics in Medicine, Charité - Universitätsmedizin Berlin, Berlin, Germany.

Department of Psychiatry, Psychotherapy and Preventive Medicine, LWL University Hospital, Ruhr University Bochum, Bochum, Germany.

出版信息

Front Psychiatry. 2025 Feb 28;16:1516996. doi: 10.3389/fpsyt.2025.1516996. eCollection 2025.

Abstract

While participatory methods are regarded as beneficial in many areas of psychiatric research, they are still rarely considered in the field of mental health ethics. Yet, there are several epistemic and ethical reasons why participatory research is particularly important in this field, such as the high relevance of experiential knowledge for ethical analyses. In this article, we report our experiences with establishing a peer advisory board for an existing mental health ethics research group. We demonstrate how a peer advisory board can provide low-threshold opportunities for various forms of participation, which can occur simultaneously within one research project. We first describe how we established the peer advisory board and explain its structure. We then give an overview of several research projects that involved various forms of participation by members of the peer advisory board, such as the development of a template for a psychiatric advance directive, the co-writing of articles, and the organization of scientific events. We discuss the challenges, benefits, and facilitators of a peer advisory board from our different vantage points as service users, relatives, clinicians, and researchers. Challenges included organizational barriers such as time constraints and rigid bureaucratic structures within academic institutions and funding bodies as well as the persistence of power imbalances between members of the research group and the peer advisory board. Benefits included the opportunity for personal development and capacity building among both peer advisory board members and members of the research group, and the multiplication of research results among the relevant communities. Based on a reflection on our own experiences, we argue that participatory research in mental health ethics is not only ethically and epistemically desirable but also practically feasible. We close by formulating several lessons learned from our experiences.

摘要

虽然参与式方法在精神病学研究的许多领域被认为是有益的,但在心理健康伦理学领域仍很少被考虑。然而,有几个认识论和伦理学原因表明参与式研究在该领域尤为重要,比如经验知识对伦理分析具有高度相关性。在本文中,我们报告了为一个现有的心理健康伦理学研究小组建立同行咨询委员会的经验。我们展示了同行咨询委员会如何为各种形式的参与提供低门槛机会,这些参与可以在一个研究项目中同时发生。我们首先描述我们如何建立同行咨询委员会并解释其结构。然后,我们概述了几个研究项目,这些项目涉及同行咨询委员会成员的各种形式的参与,例如制定精神病预嘱模板、共同撰写文章以及组织科学活动。我们从服务使用者、亲属、临床医生和研究人员等不同视角讨论了同行咨询委员会的挑战、益处和促进因素。挑战包括组织障碍,如时间限制以及学术机构和资助机构内僵化的官僚结构,还有研究小组与同行咨询委员会成员之间权力不平衡的持续存在。益处包括同行咨询委员会成员和研究小组成员个人发展和能力建设的机会,以及在相关社区中研究成果的倍增。基于对我们自身经验的反思,我们认为心理健康伦理学中的参与式研究不仅在伦理和认识论上是可取的,而且在实践中也是可行的。最后,我们总结了从我们的经验中学到的几点教训。

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