Hughes Allyson S, Bispham Jeoffrey, Fan Ludi, Nieves-Perez Magaly, McAuliffe-Fogarty Alicia H
T1D Exchange, Boston, MA, USA.
Eli Lilly & Co, Indianapolis, IN, USA.
J Patient Exp. 2020 Dec;7(6):911-914. doi: 10.1177/2374373520967501. Epub 2020 Oct 21.
Limited research exists regarding the burdens associated with type 1 diabetes (T1D). The study's objective was to understand the impact of T1D from people with T1D and caregivers of minors with T1D. Six focus groups were conducted, with a total of 31 participants. Participants included people with T1D, ages 23 to 72 (n = 17) and caregivers ages 34 to 55 (n = 14). Participants were recruited from T1D Exchange Glu. People with T1D reported time spent managing diabetes had greatest impact, while caregivers reported financial and employment sacrifices as most impactful. Our findings provide insight into the real-world daily impact of diabetes.
关于1型糖尿病（T1D）相关负担的研究有限。该研究的目的是了解T1D对T1D患者以及患有T1D的未成年人的照顾者的影响。研究开展了6个焦点小组，共有31名参与者。参与者包括年龄在23至72岁的T1D患者（n = 17）和年龄在34至55岁的照顾者（n = 14）。参与者从T1D Exchange Glu招募。T1D患者报告称管理糖尿病所花费的时间影响最大，而照顾者则报告称经济和就业方面的牺牲影响最为显著。我们的研究结果为糖尿病在现实世界中的日常影响提供了见解。
