Liesch Shari K, Elertson Kathleen M
Medical College of Wisconsin, Children's Hospital of Wisconsin-Fox Valley, Neenah, WI, USA.
University of Wisconsin-Oshkosh, College of Nursing, Oshkosh, WI, USA.
J Patient Exp. 2020 Dec;7(6):1158-1163. doi: 10.1177/2374373519892774. Epub 2019 Dec 10.
The purpose of this qualitative pilot study was to evaluate drawing, narration, color use, and meaning through discussion to increase insight surrounding youth's lived experience with type 1 diabetes.
This qualitative study reflects a convenience sample of 20 (female = 12, male = 8) youth aged 8 to 15 years with an established diagnosis of type 1 diabetes. During a nonclinic session, 3 drawings-self-portrait, face of diabetes, and future self-portrait-were created. Interviews were completed with an art therapist or clinic nurse practitioner using a standardized script.
All "face" of diabetes drawings depicted images separate from self. The most frequent color noted was gray, due to pencil use. No significant difference in disclosures or dialogue were observed between interviews conducted by the art therapist or nurse practitioner. Emerging themes noted: diabetes is unpredictable and stigmatizing, causes fears, and impacts daily life, yet discussions evidenced overall coping and resilience.
Drawing during clinic visits enhances communication and understanding of youth's lived experience. Findings offer clinical benefit when managing care and support for chronic health conditions.
这项定性试点研究的目的是通过讨论来评估绘画、叙述、色彩运用及意义，以加深对青少年1型糖尿病生活经历的了解。
这项定性研究采用便利抽样法，选取了20名8至15岁已确诊为1型糖尿病的青少年（女性12名，男性8名）。在一次非临床会议期间，创作了三幅画作——自画像、糖尿病面容和未来自画像。由艺术治疗师或临床护士从业者使用标准化脚本进行访谈。
所有糖尿病面容画作描绘的都是与自身分离的形象。由于使用铅笔，最常出现的颜色是灰色。艺术治疗师或护士从业者进行的访谈在披露内容或对话方面未观察到显著差异。出现的主题包括：糖尿病不可预测且带有污名化，会引发恐惧并影响日常生活，但讨论表明青少年总体上具备应对能力和恢复力。
在门诊就诊时绘画可增强对青少年生活经历的沟通与理解。这些发现为慢性健康状况的护理管理和支持提供了临床益处。
