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从儿童、青少年及其照料者的角度看1型糖尿病患者的生活经历及就诊情况:DEPICTED研究定性数据的分析

The experience of living with type 1 diabetes and attending clinic from the perception of children, adolescents and carers: analysis of qualitative data from the DEPICTED study.

作者信息

Lowes Lesley, Eddy Danielle, Channon Sue, McNamara Rachel, Robling Michael, Gregory John W

机构信息

School of Healthcare Sciences, Cardiff University, Cardiff, Wales.

School of Medicine, Cardiff University, Cardiff, Wales.

出版信息

J Pediatr Nurs. 2015 Jan-Feb;30(1):54-62. doi: 10.1016/j.pedn.2014.09.006. Epub 2014 Sep 28.

DOI:10.1016/j.pedn.2014.09.006
PMID:25308399
Abstract

Type 1 diabetes (T1D) is a complex, invasive childhood condition. Optimal glycemic control, essential to minimize risk of life-changing complications, is difficult to achieve. The DEPICTED trial evaluated a training program in consultation skills for pediatric diabetes teams. Qualitative descriptive analysis of questionnaire free-text comments from children, adolescents and carers participating in DEPICTED identified the emotional impact of living with T1D and how health professionals' communication skills in clinic influence the patient/carer experience. Healthcare professionals caring for children/adolescents with T1D and carers need training in patient-centered communication skills. Emotional needs of patients/carers need to be systematically assessed and addressed.

摘要

1型糖尿病(T1D)是一种复杂的侵袭性儿童疾病。最佳血糖控制对于将改变生活的并发症风险降至最低至关重要,但却难以实现。DEPICTED试验评估了一项针对儿科糖尿病团队的咨询技能培训项目。对参与DEPICTED试验的儿童、青少年和护理人员问卷自由文本评论进行的定性描述性分析,确定了患有T1D的生活所带来的情感影响,以及临床中医疗专业人员的沟通技巧如何影响患者/护理人员的体验。照顾患有T1D的儿童/青少年的医疗专业人员和护理人员需要接受以患者为中心的沟通技能培训。患者/护理人员的情感需求需要得到系统评估和解决。

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