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糖尿病的“面孔”:通过绘画洞察青少年的经历

The "Face" of Diabetes: Insight Into Youths' Experiences as Expressed Through Drawing.

作者信息

Elertson Kathleen M, Liesch Shari K, Babler Elizabeth K

机构信息

College of Nursing, University of Wisconsin-Oshkosh, Oshkosh, WI, USA.

Children's Hospital of Wisconsin-Fox Valley, Neenah, WI, USA.

出版信息

J Patient Exp. 2016 Jun;3(2):34-38. doi: 10.1177/2374373516654771. Epub 2016 Jun 16.

Abstract

OBJECTIVE

The purpose of this descriptive pilot study was to assess the ability of youth to create a meaningful drawing related to living with type 1 diabetes and explore the benefits of expressing emotion through drawing in future interventional work.

METHODS

Youth aged 4 to 19 years (N = 242) with type I diabetes attending routine follow-up appointments within a pediatric specialty clinic were asked to draw: "If diabetes had a face what would it look like?"

RESULTS

Drawings reflected many emotions and ranged from simple to complex in detail. Drawings reflected multiple experiences of living with diabetes including emotions, tools used for management, and effects of self-care.

CONCLUSIONS

Youth were able to create drawings reflecting their experience of living with diabetes. Youth conveyed a variety of emotions, attitudes, and experiences in drawing the "face" of diabetes. Drawing during clinic visits provides opportunity to explore the unspoken experiences of living with a chronic health condition, which may not be obtained during routine clinical information gathering. Deeper understanding of patient's lived experience may assist providers in therapeutic management.

摘要

目的

这项描述性试点研究的目的是评估青少年创作与1型糖尿病生活相关的有意义画作的能力,并在未来的干预工作中探索通过绘画表达情感的益处。

方法

在儿科专科诊所接受常规随访的4至19岁1型糖尿病青少年(N = 242)被要求画出:“如果糖尿病有一张脸,它会是什么样子?”

结果

画作反映了许多情感,细节从简单到复杂不等。画作反映了与糖尿病生活的多种经历,包括情感、用于管理的工具以及自我护理的影响。

结论

青少年能够创作出反映他们糖尿病生活经历的画作。青少年在描绘糖尿病“脸”时传达了各种情感、态度和经历。在诊所就诊期间绘画提供了探索慢性健康状况下未言明经历的机会,这在常规临床信息收集过程中可能无法获得。对患者生活经历的更深入理解可能有助于医护人员进行治疗管理。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/0a68/5513618/7bab80d4de4c/10.1177_2374373516654771-fig1.jpg

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