Fitch Margaret I, Nicoll Irene, Lockwood Gina
Bloomberg Faculty of Nursing, University of Toronto, Toronto, Ontario, Canada.
University of Toronto, Toronto, Ontario, Canada.
J Patient Exp. 2020 Dec;7(6):1501-1508. doi: 10.1177/2374373520942420. Epub 2020 Jul 17.
The purpose was to review the perspectives of cancer survivors about what they perceive constitutes positive cancer experiences. A national survey was conducted in collaboration with 10 Canadian provinces to identify experiences and unmet needs for cancer survivors between 1 and 3 years of posttreatment. The survey included open-ended questions designed to allow the respondents to add topics and details of importance. This publication presents the analysis of quantitative data and open-ended questions regarding cancer survivors' perspectives about positive experiences and gaps in care during their cancer journey. Of the 13 534 unique adult survey respondents, 7794 (57.6%) responded to the positive experiences question and 6434 (47.5%) to the question about gaps in care. Elements of positive experiences included the compassionate health care workers, maintaining a positive outlook and the support of family and friends. Gaps in care included a lack of access to services, information, and support. Respondents were able to identify positive aspects of their cancer experiences and where improvements were needed. These findings assist in determining how health care professionals can address the needs of cancer patients based on what survivors have identified as helpful.
目的是回顾癌症幸存者对于他们所认为的积极癌症经历构成要素的看法。与加拿大10个省份合作开展了一项全国性调查,以确定癌症幸存者在治疗后1至3年期间的经历和未满足的需求。该调查包括开放式问题,旨在让受访者补充重要的主题和细节。本出版物呈现了关于癌症幸存者对积极经历以及癌症治疗过程中护理差距的看法的定量数据和开放式问题的分析。在13534名成年调查受访者中,7794人(57.6%)回答了关于积极经历的问题,6434人(47.5%)回答了关于护理差距的问题。积极经历的要素包括富有同情心的医护人员、保持积极的心态以及家人和朋友的支持。护理差距包括难以获得服务、信息和支持。受访者能够确定其癌症经历的积极方面以及需要改进之处。这些发现有助于确定医护人员如何根据幸存者所认为的有益因素来满足癌症患者的需求。