Klappa Susan G, Thompson Julie A I, Blatt Stuart
University of North Georgia, Dahlonega, GA.
Briar Cliff University, IA, USA.
J Patient Exp. 2020 Dec;7(6):1732-1739. doi: 10.1177/2374373520937171. Epub 2020 Jul 2.
The purpose of this study was to investigate grit, exercise, and quality of life (QOL) among individuals diagnosed with Parkinson's disease (PD). A sample of convenience was used. A survey which included the grit scale, QOL scale, and open-ended questions was distributed to participants (n = 101, 51 male and 50 female) who are members of online PD support groups across the United States. Data were analyzed by SPSS 25. Grit values averaged 3.65 ± 0.51 for participants (n = 101). When divided into groups, mean grit score for community-based exercisers was 3.78 ± 0.42 and 3.10 ± 0.48 for home-based exercisers. Grit was positively correlated to higher QOL on the Parkinson's disease quality of life (PDQL; = +0.293, = .004). Grit was positively correlated to the emotional component of the PDQL ( = +0.462, < .001). Participants with higher grit levels had higher emotional coping responses after being diagnosed with PD, exercised more, and were more willing to self-advocate. With limited rehabilitation visits allowed, physical therapists should be aware of community-based programs to redefine participation roles after diagnosis.
本研究的目的是调查被诊断为帕金森病(PD)的个体的坚毅、运动和生活质量(QOL)。采用了便利抽样。一项包含坚毅量表、生活质量量表和开放式问题的调查问卷被分发给了来自美国各地在线帕金森病支持小组的参与者(n = 101,51名男性和50名女性)。数据用SPSS 25进行分析。参与者(n = 101)的坚毅值平均为3.65±0.51。分组后,社区锻炼者的平均坚毅得分是3.78±0.42,居家锻炼者的平均坚毅得分是3.10±0.48。坚毅与帕金森病生活质量(PDQL)较高的生活质量呈正相关(r = +0.293,p = .004)。坚毅与PDQL的情感成分呈正相关(r = +0.462,p < .001)。坚毅水平较高的参与者在被诊断为帕金森病后有更高的情绪应对反应,运动更多,并且更愿意自我主张。由于允许的康复就诊次数有限,物理治疗师应该了解社区项目,以便在诊断后重新定义参与角色。