Department of Psychology, University of Nevada, Las Vegas, USA.
Department of Psychiatry and Behavioral Sciences, University of Washington, Seattle, USA.
Gerontologist. 2021 Sep 13;61(7):1095-1106. doi: 10.1093/geront/gnab008.
Identifying the experience of people with mild cognitive impairment (MCI) may help develop research agendas, interventions, and other supports to better match individuals' needs. The purpose of this study was to explore the subjective experience of a "typical week" living with MCI to document (a) important activities, (b) barriers to usual activities, and (c) facilitators and supports.
We conducted remote individual photo-elicitation interviews with 11 community-dwelling adults aged 55 years or older with MCI. Participants each provided 5-10 photographs of daily life taken over 1 week to facilitate a semistructured qualitative interview. Interview transcriptions were coded in Dedoose software and analyzed using thematic analysis.
Participants shared photos and narratives highlighting the important activities in a typical week, in which physical activity, social engagement, spiritual and religious practice, hobbies, and cognitive stimulation were central. Many also shared disruptions to former routines and reduction of activities alongside increased use of new strategies and environmental supports (e.g., calendars, smartphones). Finally, emergent themes centered on disclosure of their diagnosis and reflections about the future.
Participant-generated images aided data collection and facilitated discussion of sensitive topics with individuals with MCI. Such narratives may illustrate the needs and opportunities to promote well-being in individuals with MCI, including engagement in meaningful and health-promoting activities, assessing barriers to important daily activities, and considering supports that match the experience and needs of those with MCI.
识别轻度认知障碍(MCI)患者的体验有助于制定研究议程、干预措施和其他支持措施,以更好地满足个体的需求。本研究旨在探索 MCI 患者“典型一周”的主观体验,以记录:(a) 重要活动;(b) 日常活动障碍;(c) 促进因素和支持。
我们对 11 名居住在社区的 55 岁及以上 MCI 成年人进行了远程个人照片诱发访谈。参与者每人提供 5-10 张日常生活照片,以方便进行半结构化定性访谈。在 Dedoose 软件中对访谈记录进行编码,并使用主题分析进行分析。
参与者分享了照片和叙述,突出了典型一周中的重要活动,其中身体活动、社交参与、精神和宗教实践、爱好和认知刺激是核心。许多人还分享了前常规的中断和活动的减少,以及新策略和环境支持(例如日历、智能手机)的使用增加。最后,出现的主题集中在对诊断的披露和对未来的思考上。
参与者生成的图像有助于数据收集,并促进了与 MCI 患者讨论敏感话题。此类叙述可能说明了促进 MCI 个体幸福感的需求和机会,包括参与有意义和促进健康的活动、评估重要日常活动的障碍以及考虑与 MCI 患者的体验和需求相匹配的支持。