École des hautes études commerciales de Paris (HEC Paris), Jouy-en-Josas, France.
Oliba, Rome, Italy.
J Med Internet Res. 2021 Jan 29;23(1):e25652. doi: 10.2196/25652.
A reduction in the number of face-to-face medical examinations conducted for patients with noncommunicable diseases (NCDs) during the first wave of the COVID-19 pandemic has led to health care professionals quickly adopting different strategies to communicate with and monitor their patients. Such strategies include the increased use of digital health tools. However, patient preferences, privacy concerns, a lack of regulations, overregulation, and insufficient evidence on the efficacy of digital health tools may have hampered the potential positive benefits of using such tools to manage NCDs.
This viewpoint aims to discuss the views of an advisory board of patient and caregiver association members. Specifically, we aim to present this advisory board's view on the role of digital health tools in managing patients with NCDs during and after the COVID-19 pandemic, and to identify future directions based on patients' perspectives.
As an initiative under the NCD Partnership (PARTners in Ncds Engage foR building Strategies to improve Healthy ageing In Patients) model of Upjohn, a web-based advisory board of patient and caregiver advocates was held on July 28, 2020, to bring together key stakeholders from public and private sectors.
The following key themes emerged: (1) technology developers should understand that the goals of patients may differ from those of health care professionals and other stakeholders; (2) patients, health care professionals, caregivers, and other end users need to be involved in the development of digital health tools at the earliest phase possible, to guarantee usability, efficacy, and adoption; (3) digital health tools must be better tailored to people with complex conditions, such as multimorbidity, older age, and cognitive or sensory impairment; and (4) some patients do not want or are unable to use digital health care tools, so adequate alternatives should always be available.
There was consensus that public-private partnership models, such as the Upjohn NCD Partnership, can be effective models that foster innovation by integrating multiple perspectives (eg, patients' perspectives) into the design, development, and implementation of digital and nondigital health tools, with the main overall objective of improving the life of patients with NCDs.
在 COVID-19 大流行的第一波期间,对非传染性疾病(NCD)患者进行的面对面医疗检查数量减少,这导致医疗保健专业人员迅速采用不同的策略与患者进行沟通和监测。这些策略包括增加使用数字健康工具。然而,患者偏好、隐私问题、缺乏监管、过度监管以及数字健康工具功效的证据不足,可能阻碍了使用这些工具管理 NCD 的潜在积极效益。
本观点旨在讨论一个由患者和护理人员协会成员组成的顾问委员会的观点。具体而言,我们旨在介绍该顾问委员会对数字健康工具在 COVID-19 大流行期间和之后管理 NCD 患者的作用的看法,并根据患者的观点确定未来的方向。
作为 Upjohn 下属的 NCD 合作伙伴关系(PARTners in Ncds Engage foR building Strategies to improve Healthy ageing In Patients)模式的一项举措,于 2020 年 7 月 28 日举行了一个基于网络的患者和护理人员倡导顾问委员会会议,汇集了公共和私营部门的主要利益相关者。
出现了以下主要主题:(1)技术开发商应了解患者的目标可能与医疗保健专业人员和其他利益相关者的目标不同;(2)患者、医疗保健专业人员、护理人员和其他最终用户需要在尽可能早的阶段参与数字健康工具的开发,以保证可用性、功效和采用率;(3)数字健康工具必须更好地针对患有多种疾病、年龄较大、认知或感觉障碍等复杂疾病的人群进行定制;(4)一些患者不想或无法使用数字医疗保健工具,因此始终应提供足够的替代工具。
与会者一致认为,公私合作伙伴关系模式,如 Upjohn NCD 合作伙伴关系,可以通过整合多个视角(例如,患者视角)到数字和非数字健康工具的设计、开发和实施中,成为促进创新的有效模式,主要总体目标是改善 NCD 患者的生活。