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脊髓损伤人群对社区场所的使用和参与,以及他们的生活质量。

Access and engagement with places in the community, and the quality of life among people with spinal cord damage.

机构信息

The School of Psychology and Public Health, La Trobe University, Melbourne, Australia.

The Hopkins Centre, Menzies Health Institute Queensland, Griffith University, Meadowbrook, Australia.

出版信息

J Spinal Cord Med. 2022 Jul;45(4):522-530. doi: 10.1080/10790268.2020.1860867. Epub 2021 Jan 19.

Abstract

OBJECTIVES

This study aims to investigate the association between self-reported accessibility and engagement with health services and places in the community, and quality of life (QOL) for people with spinal cord damage (SCD).

DESIGN

Cross-sectional survey.

SETTING

Community.

PARTICIPANTS

Two-hundred and sixty-six people with a SCD residing in Australia ( = 62.34,  = 15.95).

OUTCOME MEASURE

The International Spinal Cord Injury Quality of Life Basic Data Set.

RESULTS

Univariate regressions demonstrated that accessing a higher number of places in the community was significantly associated with favorable self-reported psychological health ( = .160, P < .01), physical health ( = .144, P < .01), overall well-being ( = .206, P < .01), and QOL ( = .187, P < .01). In contrast, reporting a higher number of inaccessible places was significantly associated with unfavorable self-reported psychological health ( = -.171, P < .01), physical health ( = -.270, P < .001), overall well-being ( = -.238, P < .001), and QOL ( = -.244, P < .001). Being older and living with injury or onset of damage longer were significantly associated with favorable scores across all outcomes (P < .01) except physical health.

CONCLUSIONS

Community engagement can have a considerable impact on the self-reported health and QOL of people with SCD. Interventions aimed at increasing community engagement, particularly for people who have recently experienced SCD are warranted.

摘要

目的

本研究旨在探讨人们自我报告的获取和参与社区内健康服务和场所的便利性与脊髓损伤(SCD)患者生活质量(QOL)之间的关系。

设计

横断面调查。

地点

社区。

参与者

266 名居住在澳大利亚的 SCD 患者( = 62.34, = 15.95)。

测量结果

国际脊髓损伤生活质量基本数据集。

结果

单变量回归分析表明,进入社区的场所数量越多,自我报告的心理健康( = .160,P < .01)、身体健康( = .144,P < .01)、整体幸福感( = .206,P < .01)和 QOL( = .187,P < .01)越好。相比之下,报告更多的无法进入的场所与自我报告的心理健康( = -.171,P < .01)、身体健康( = -.270,P < .001)、整体幸福感( = -.238,P < .001)和 QOL( = -.244,P < .001)越差显著相关。年龄较大且受伤或发病时间较长与所有结局(P < .01)的良好评分显著相关,除了身体健康。

结论

社区参与对 SCD 患者的自我报告健康和 QOL 有很大影响。有必要针对那些最近经历过 SCD 的人开展旨在增加社区参与的干预措施。

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J Spinal Cord Med. 2020 Sep;43(5):586-593. doi: 10.1080/10790268.2019.1621730. Epub 2019 Jun 24.
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Secondary conditions in a community sample of people with spinal cord damage.脊髓损伤患者社区样本中的继发性疾病。
J Spinal Cord Med. 2016 Nov;39(6):665-670. doi: 10.1080/10790268.2016.1138600. Epub 2016 Feb 23.

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