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2008 年汶川地震后 8 年脊髓损伤患者的环境障碍、功能和生活质量:一项横断面研究。

Environmental barriers, functioning and quality of life in 2008 Wenchuan earthquake victims with spinal cord injury eight years after the disaster: A cross-sectional study.

机构信息

Institute for Disaster Management and Reconstruction, Sichuan University, China.

出版信息

J Rehabil Med. 2018 Nov 7;50(10):866-871. doi: 10.2340/16501977-2380.

Abstract

OBJECTIVE

To examine environmental barriers, func-tioning, and quality of life in Wenchuan earthquake survivors with spinal cord injury.

DESIGN

Cross-sectional study.

SUBJECTS

Thirty-two adult Wenchuan earthquake survivors with spinal cord injury.

METHODS

Data were collected on environmental factors with the Nottwil Environmental Factors Inventory Short Form (NEFI-SF), physical and mental functioning with the 36-item Short-Form Health Survey (SF-36), and quality of life with the World Health Organization Quality of Life-BREF (WHOQOL-BREF). Descriptive analysis of environmental barriers and comparisons of SF-36 and WHOQOL-BREF domain scores with normative data were performed. Variations in outcomes across demographic and lesion characteristics were examined using Mann-Whitney U test. Associations of NEFI-SF with SF-36 and WHOQOL-BREF domain scores were explored using Spearman's correlation.

RESULTS

Wenchuan earthquake survivors with spinal cord injury were affected by a large number of environmental barriers. Their functioning and quality of life were considerably reduced in comparison with respective reference populations. Neither environmental barriers nor functioning or quality of life varied systematically by demographic and lesion characteristics. Increased numbers of perceived environmental barriers were strongly associated with decreased scores across SF-36 and WHOQOL-BREF sub-domains.

CONCLUSION

Wenchuan earthquake survivors with SCI faced a considerable number of environmental barriers and showed decreased functioning and quality of life. Environmental barriers were strongly related to functioning and quality of life.

摘要

目的

研究汶川地震脊髓损伤幸存者的环境障碍、功能和生活质量。

设计

横断面研究。

对象

32 名成年汶川地震脊髓损伤幸存者。

方法

采用 Nottwil 环境因素量表简表(NEFI-SF)收集环境因素数据,用 36 项简明健康调查问卷(SF-36)收集身体和精神功能数据,用世界卫生组织生活质量简表(WHOQOL-BREF)收集生活质量数据。对环境障碍进行描述性分析,并与常模数据比较 SF-36 和 WHOQOL-BREF 各领域得分。采用 Mann-Whitney U 检验比较人口统计学和损伤特征不同的幸存者之间的结果差异。采用 Spearman 相关分析探讨 NEFI-SF 与 SF-36 和 WHOQOL-BREF 各领域得分的相关性。

结果

汶川地震脊髓损伤幸存者面临大量环境障碍,其功能和生活质量明显低于相应的参考人群。环境障碍、功能或生活质量均无系统地随人口统计学和损伤特征变化而变化。感知到的环境障碍数量越多,SF-36 和 WHOQOL-BREF 各子领域得分越低。

结论

汶川地震脊髓损伤幸存者面临大量环境障碍,其功能和生活质量均降低。环境障碍与功能和生活质量密切相关。

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