TALIONIS Research Group, Research Center of Information and Comunication Technologies (CITIC), Faculty of Health Science, Universidade da Coruña (University of A Coruña), 15006 La Coruna, Spain.
Galician Association of Amyotrophic Lateral Sclerosis (AGAELA), 15670 Culleredo, Spain.
Int J Environ Res Public Health. 2021 Jan 18;18(2):763. doi: 10.3390/ijerph18020763.
(1) Background: The study is focused on the implementation of outcome measurement tools to assess the impact of an assistive device from a loan bank in the lives of people with Amyotrophic Lateral Sclerosis and Neuromuscular Diseases. The secondary purpose is to analyse the correct matching between the person and technology, derived from the counselling of an occupational therapist. (2) Methods: Cross-sectional study. The sample was formed by 28 people with rare neurodegenerative disorders. A specific questionnaire, the Psychosocial Impact of Assistive Device Scale (PIADS), and the Matching Person and Technology (MPT) tool were applied to collect the data. (3) Results: The dimension of the PIADS with the best score was competence, and the variations according to gender were not remarkable. The three dimensions of the PIADS (competence, adaptability, and self-esteem) were correlated positively between them and with the mean score of the MPT tool ( < 0.01). The type of assistive technology (AT), diagnosis, and correct match between person-technology are the main factors that condition a positive impact. (4) Conclusions: The results noted the importance of assessing the needs, demands, and contexts of people with rare neurodegenerative diseases to prescribe the best AT. Loan banks of AT have to be considered a valid service that complements their lack in public health services.
(1) 背景：本研究专注于使用成果测量工具评估辅助设备对肌萎缩侧索硬化症和神经肌肉疾病患者生活的影响。次要目的是分析来自职业治疗师咨询的人与技术之间的正确匹配。 (2) 方法：横断面研究。样本由 28 名患有罕见神经退行性疾病的人组成。应用特定问卷，即辅助设备心理社会影响量表（PIADS）和人与技术匹配（MPT）工具收集数据。 (3) 结果：PIADS 得分最高的维度是能力，且性别差异不显著。PIADS 的三个维度（能力、适应性和自尊）彼此之间以及与 MPT 工具的平均得分呈正相关（<0.01）。辅助技术类型（AT）、诊断和人与技术的正确匹配是影响积极影响的主要因素。 (4) 结论：结果表明，评估罕见神经退行性疾病患者的需求、要求和背景对于规定最佳 AT 非常重要。辅助技术贷款银行必须被视为一种有效的服务，可以补充公共卫生服务的不足。
