CanChild Centre for Childhood Disability Research, McMaster University, Hamilton, Canada.
School of Rehabilitation Science, McMaster University, Hamilton, Canada.
Disabil Rehabil. 2022 Jun;44(13):3326-3348. doi: 10.1080/09638288.2020.1857850. Epub 2021 Jan 21.
The objectives of this review were to: (a) explore the extent and nature of available research on non-custodial grandparents of children with physical, intellectual, or neurodevelopmental disabilities and (b) descriptively summarize the research findings from those studies.
We followed the five-stage scoping review methodology to identify relevant studies from four databases: Medline, CINAHL, Embase, and PsycINFO. Primary, peer-reviewed studies that explored grandparent-related topics in the context of childhood disability were included.
Thirty-one studies were identified and analyzed. All of the studies followed non-experimental and qualitative study designs. In the last decade, there has been a growing interest in research on this population ( = 15). Grandparents varied considerably in age, education, employment status, and living arrangements ( = 4680). Grandmothers represented the vast majority of the population (82%). We grouped the grandparent-related findings from the individual reports into four categories: 1. Adjustment to grandchild's disability, 2. Roles, 3. Perceptions, and 4. Experiences.
Grandparents of children with disabilities are a heterogeneous population that experiences unique challenges in their grandparenting role. Future studies on this topic should be oriented toward high-quality, experimental study designs that take into consideration cultural, religious and demographic factors. Grandparents' involvement in healthcare should be encouraged.IMPLICATIONS FOR REHABILITATIONGrandparents of children with developmental disabilities who are not primary caregivers to their grandchild(ren) are significant family members in many families.They face unique challenges in adapting to their grandchild's disability and interacting with professionals regarding their grandchild's disability and functioning.Although there is considerable heterogeneity within this population, most grandparents share the experiences of gradual emotional adjustment to their grandchild's disability, active family involvement, positive perceptions of their family and grandchild's disability and lack of services for them.There are no identified interventions in the research literature that aimed to support grandparents of children with disabilities.
本次综述的目的是：（a）探索针对有身体、智力或神经发育障碍儿童的非监护祖父母的现有研究的广度和性质；（b）对这些研究的研究结果进行描述性总结。
我们采用五阶段的范围综述方法，从四个数据库（Medline、CINAHL、Embase 和 PsycINFO）中确定了相关研究。纳入了探索儿童残疾背景下与祖父母相关话题的主要、同行评议研究。
确定并分析了 31 项研究。所有研究均采用非实验性和定性研究设计。在过去十年中，人们对该人群的研究兴趣日益浓厚（ = 15）。祖父母在年龄、教育、就业状况和居住安排方面差异很大（ = 4680）。祖母在该人群中占绝大多数（82%）。我们将来自个别报告的与祖父母相关的发现分为四类：1. 适应孙子女的残疾；2. 角色；3. 认知；4. 体验。
残疾儿童的祖父母是一个异质群体，在其祖辈角色中面临独特的挑战。未来关于这一主题的研究应倾向于高质量、考虑文化、宗教和人口统计学因素的实验性研究设计。应鼓励祖父母参与医疗保健。
不是孙子女主要照顾者的发育障碍儿童的祖父母是许多家庭中的重要家庭成员。他们在适应孙子女的残疾和与专业人士就孙子女的残疾和功能进行互动方面面临独特的挑战。尽管该人群存在相当大的异质性，但大多数祖父母都经历了对孙子女残疾的逐渐情感调整、积极的家庭参与、对家庭和孙子女残疾的积极认知以及缺乏针对他们的服务。在研究文献中，没有确定旨在支持残疾儿童祖父母的干预措施。
