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本文引用的文献

1
Fathers' Experiences of Childhood Cancer: A Phenomenological Qualitative Study.父亲对儿童癌症的体验:一项现象学定性研究。
J Fam Nurs. 2023 May;29(2):155-165. doi: 10.1177/10748407221145062. Epub 2023 Jan 30.
2
Parents' Experiences of Childhood Cancer During the COVID-19 Pandemic: An Australian Perspective.父母在 COVID-19 大流行期间对儿童癌症的体验:澳大利亚视角。
J Pediatr Psychol. 2022 Feb 14;47(2):148-157. doi: 10.1093/jpepsy/jsab125.
3
Policy Initiatives to Address the Challenges of an Older Population in the Workforce.应对劳动力中老年人口挑战的政策举措。
Ageing Int. 2023;48(1):41-77. doi: 10.1007/s12126-021-09442-w. Epub 2021 Aug 27.
4
A scoping review of the literature on grandparents of children with disabilities.对残疾儿童祖辈的文献进行的范围综述。
Disabil Rehabil. 2022 Jun;44(13):3326-3348. doi: 10.1080/09638288.2020.1857850. Epub 2021 Jan 21.
5
"This is the worst that has happened to me in 86 years": A qualitative study of the experiences of grandparents losing a grandchild due to a neurological or oncological disease.“这是我 86 年来经历过的最糟糕的事情”:一项关于因神经或肿瘤疾病失去孙子/女的祖父母的经历的定性研究。
J Spec Pediatr Nurs. 2021 Jan;26(1):e12311. doi: 10.1111/jspn.12311. Epub 2020 Sep 28.
6
A simple method to assess and report thematic saturation in qualitative research.一种评估和报告定性研究主题饱和度的简单方法。
PLoS One. 2020 May 5;15(5):e0232076. doi: 10.1371/journal.pone.0232076. eCollection 2020.
7
Financial toxicity of childhood cancer and changes to parents' employment after treatment completion.儿童癌症的财务毒性和治疗完成后父母就业的变化。
Pediatr Blood Cancer. 2020 Jul;67(7):e28345. doi: 10.1002/pbc.28345. Epub 2020 Apr 25.
8
A Review of the Quality Indicators of Rigor in Qualitative Research.一项关于定性研究严谨性质量指标的综述。
Am J Pharm Educ. 2020 Jan;84(1):7120. doi: 10.5688/ajpe7120.
9
Grandparents of children with cancer: a controlled comparison of perceived family functioning.癌症患儿的祖辈:家庭功能感知的对照研究
Support Care Cancer. 2019 Jun;27(6):2087-2094. doi: 10.1007/s00520-018-4468-7. Epub 2018 Sep 18.
10
Grandparents of children with cancer: Quality of life, medication and hospitalizations.患癌儿童的祖父母:生活质量、药物治疗与住院情况。
Pediatr Blood Cancer. 2017 Jan;64(1):163-171. doi: 10.1002/pbc.26153. Epub 2016 Jul 21.

祖辈经历儿童癌症:一项定性研究。

Grandparents' Experiences of Childhood Cancer: A Qualitative Study.

机构信息

Curtin University, Perth, Western Australia, Australia.

University of New South Wales, Sydney, Australia.

出版信息

J Fam Nurs. 2024 Feb;30(1):30-40. doi: 10.1177/10748407231213862. Epub 2023 Nov 28.

DOI:10.1177/10748407231213862
PMID:38014512
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC10788041/
Abstract

A child's cancer diagnosis has a significant impact on the lives of grandparents. Grandparents experience the stress of worrying about both their adult children and their grandchildren. Our study aimed to explore the lived experience of grandparents of children diagnosed with cancer. A qualitative design involving semi-structured interviews was used and data were analyzed using reflexive thematic analysis. Twenty grandparents aged 41 to 77 years were interviewed. Six themes were identified: (a) Diagnosis: changing everything; (b) Aspects of treatment: A different world; (c) Sandwich generation; (d) Family: Worrying about everyone; (e) Balancing work; and (f) It's like suddenly a door opens. Our study demonstrates the life-changing impact of having a grandchild diagnosed with cancer. It expands on existing knowledge and shows that, due to an aging population and demographic changes, some grandparents must juggle the demands of caring for aging family members and working while supporting adult children and grandchildren.

摘要

儿童癌症诊断对祖父母的生活有重大影响。祖父母承受着对成年子女和孙辈的担忧的压力。我们的研究旨在探讨被诊断患有癌症的儿童的祖父母的生活体验。采用定性设计,包括半结构化访谈,使用反思性主题分析进行数据分析。采访了 20 名年龄在 41 至 77 岁的祖父母。确定了六个主题:(a)诊断:一切都变了;(b)治疗方面:一个不同的世界;(c)夹心一代;(d)家庭:担心每个人;(e)平衡工作;(f)就像突然一扇门打开了。我们的研究表明,有一个孙子被诊断患有癌症会改变生活。它扩展了现有知识,并表明,由于人口老龄化和人口结构变化,一些祖父母必须在照顾年迈的家庭成员、工作和支持成年子女和孙辈之间取得平衡。