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手部关节炎患者关节保护计划的障碍、促进因素、偏好及期望:一项横断面调查

Barriers, facilitators, preferences and expectations of joint protection programmes for patients with hand arthritis: a cross-sectional survey.

作者信息

Bobos Pavlos, MacDermid Joy, Ziebart Christina, Boutsikari Eleni, Lalone Emily, Ferreira Louis, Grewal Ruby

机构信息

Health and Rehabilitation Sciences, Western University, London, Ontario, Canada

Dalla Lana School of Public Health, Institute of Health Policy Management and Evaluation, University of Toronto, Toronto, Ontario, Canada.

出版信息

BMJ Open. 2021 Jan 22;11(1):e041935. doi: 10.1136/bmjopen-2020-041935.

DOI:10.1136/bmjopen-2020-041935
PMID:33483445
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC7831706/
Abstract

OBJECTIVES

The objective of this survey was to investigate the barriers, facilitators, expectations and patient preferences regarding joint protection (JP) programmes in people with hand arthritis.

DESIGN

Cross-sectional survey.

SETTING

Tertiary clinic.

PARTICIPANTS

Patients with hand arthritis: osteoarthritis, rheumatoid arthritis, psoriatic arthritis and other forms of arthritis.

PRIMARY AND SECONDARY OUTCOME MEASURES

This study used a survey among people with hand arthritis. Descriptive statistics and percentages were reported for all the data about the barriers, facilitators and preferences around JP.

RESULTS

A total of 192 patients consented to participate. Most of the patients (82%) were unaware of JP. Factors that may act as barriers to participation and were regarded as 'a very big concern' were: cost of the programme (44%), time of offering the programme (39%), work commitments (36%) and having a centre/clinic close to the house (28%). Factors that may act as facilitators and rated as 'extremely helpful' were: research that shows that JP works (26%) and having the centre/clinic close to the house (25%). An online format for JP was the most preferred option (54%). Half (46%) preferred a timeframe of 1 hour, three times per week and 44% preferred a 2-hour programme, for three times per week.

CONCLUSIONS

Awareness of the potential benefits of JP, and prior experience with JP programme were very low. Common potentially modifiable patient-reported barriers to participate in future JP interventions, included: cost, work commitments, distance from home to clinic and times that the intervention were provided. These barriers might be addressed with free and accessible forms of delivery of JP, which may lead to better uptake and participation in JP programmes.

摘要

目的

本调查旨在研究手部关节炎患者在关节保护(JP)计划方面的障碍、促进因素、期望和患者偏好。

设计

横断面调查。

地点

三级诊所。

参与者

手部关节炎患者,包括骨关节炎、类风湿关节炎、银屑病关节炎和其他形式的关节炎患者。

主要和次要结局指标

本研究对手部关节炎患者进行了一项调查。报告了所有关于JP周围障碍、促进因素和偏好的描述性统计数据及百分比。

结果

共有192名患者同意参与。大多数患者(82%)不了解JP。可能成为参与障碍且被视为“非常大的担忧”的因素有:计划成本(44%)、提供计划的时间(39%)、工作安排(36%)以及住所附近有中心/诊所(28%)。可能成为促进因素且被评为“极其有帮助”的因素有:表明JP有效的研究(26%)以及住所附近有中心/诊所(25%)。JP的在线形式是最受欢迎的选择(54%)。一半(46%)的人更喜欢每周三次、每次1小时的时间安排,44%的人更喜欢每周三次、每次2小时的计划。

结论

对JP潜在益处的认识以及对JP计划的既往经验非常低。患者报告的未来参与JP干预的常见潜在可改变障碍包括:成本、工作安排、住所到诊所的距离以及干预提供的时间。这些障碍可以通过免费且可及的JP提供形式来解决,这可能会导致更好地接受和参与JP计划。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/76cb/7831706/14293ad0375c/bmjopen-2020-041935f04.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/76cb/7831706/50294ebbbfc9/bmjopen-2020-041935f03.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/76cb/7831706/14293ad0375c/bmjopen-2020-041935f04.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/76cb/7831706/50294ebbbfc9/bmjopen-2020-041935f03.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/76cb/7831706/14293ad0375c/bmjopen-2020-041935f04.jpg

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