Child Life Department, Monroe Carell Jr. Children's Hospital at Vanderbilt, Nashville, TN, USA.
Palliat Med. 2021 Mar;35(3):529-551. doi: 10.1177/0269216321989565. Epub 2021 Jan 25.
Legacy has been invoked as a means for strengthening human attachments, continuing bonds, and ensuring that individuals will be remembered; however, little is known about the spectrum of approaches to, outcomes associated with, and best practices for legacy interventions.
To systematically review research on legacy perceptions and interventions in pediatric and adult palliative care recipients.
A systematic mixed studies review synthesizing quantitative, qualitative, and mixed-methods study findings using PRISMA guidelines.
PubMed, PsycINFO, and CINAHL databases were searched on October 1, 2020. GRADE criteria were used to assess quality of quantitative reports, and the Johns Hopkins Evidence Level and Quality Guide was used to rate qualitative, mixed methods, and review articles. Data were synthesized using integrative thematic analysis.
The 67 studies reviewed describe a variety of legacy perceptions and interventions with adult and pediatric patients receiving palliative care. Statistically significant improvements in various dimensions of wellbeing are documented, with significant reduction in incidence and symptoms of depression in adults. Studies highlight the utility, feasibility, and perceived benefits of legacy interventions according to adult patients and their caregivers, and parents/caregivers of pediatric patients.
Though future research with high-quality, experimental designs is needed, the positive outcomes associated with legacy interventions are documented in adult patient populations; additionally, the application of legacy interventions for children with serious illnesses receiving palliative care is reasonable based on the existing body of evidence. A consistent and operational concept of legacy is still needed for future research and practice.
传统被认为是加强人类情感联系、延续纽带并确保个人被铭记的一种方式；然而，对于传统干预措施的方法、与传统干预措施相关的结果以及最佳实践，人们知之甚少。
系统回顾儿科和成人姑息治疗接受者的传统观念和干预措施的研究。
使用 PRISMA 指南综合定量、定性和混合方法研究结果的系统混合研究综述。
2020 年 10 月 1 日在 PubMed、PsycINFO 和 CINAHL 数据库中进行了搜索。使用 GRADE 标准评估定量报告的质量，使用约翰霍普金斯证据水平和质量指南对定性、混合方法和综述文章进行评级。使用综合主题分析对数据进行综合。
综述的 67 项研究描述了各种与接受姑息治疗的成人和儿科患者相关的传统观念和干预措施。有文献记录了各种幸福感维度的显著改善，并且在成人中显著减少了抑郁的发生率和症状。研究强调了传统干预措施根据成人患者及其照顾者以及儿科患者的父母/照顾者的实用性、可行性和感知益处。
尽管需要未来具有高质量、实验设计的研究，但在成人患者群体中记录了与传统干预措施相关的积极结果；此外，基于现有证据，为患有严重疾病接受姑息治疗的儿童应用传统干预措施是合理的。未来的研究和实践仍需要一个一致的、可操作的传统概念。
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