Ramsay B, O'Reagan M
Dermatology Department, Royal Victoria Infirmary, Newcastle upon Tyne, U.K.
Br J Dermatol. 1988 Feb;118(2):195-201. doi: 10.1111/j.1365-2133.1988.tb01774.x.
One hundred and four consecutive patients with psoriasis who were being treated in two Dublin dermatology hospital units answered a questionnaire. Social and emotional morbidity was present for many patients despite access to modern treatment facilities. Fifty five percent of patients had never experienced a complete remission from their psoriasis. A large percentage of patients avoided common social activities, for example swimming and sports; 50% felt that psoriasis had inhibited their sexual relationships and 11% of patients said they would avoid having children in case their offspring should develop the condition. Thirty-six per cent felt the hospital doctor spent most of the consultation time writing prescriptions and 59% of patients had never been given an explanatory pamphlet or book about psoriasis. To help patients to come to terms with what is for many a lifelong condition, greater efforts should be made to improve the communication at consultation, and provide more patient education.
在都柏林两家皮肤科医院科室接受治疗的104例连续性银屑病患者回答了一份问卷。尽管有现代治疗设施,但许多患者仍存在社会和情感方面的问题。55%的患者从未经历过银屑病的完全缓解。很大比例的患者避免参加常见的社交活动,如游泳和运动;50%的患者认为银屑病阻碍了他们的性关系,11%的患者表示他们会避免生育,以防后代患上该病。36%的患者觉得医院医生在会诊时大部分时间都在开处方,59%的患者从未收到过关于银屑病的解释性小册子或书籍。为了帮助患者接受这一许多人要面对的终身疾病,应做出更大努力改善会诊时的沟通,并提供更多患者教育。