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中重度银屑病对中国患者生活质量的影响:一项定性研究。

Impact of moderate-to-severe psoriasis on quality of life in China: a qualitative study.

机构信息

Department of Dermatology, Qilu Hospital, Shandong University, Jinan, 250012, China.

Centre for Health Management and Policy Research, School of Public Health, Cheeloo College of Medicine, Shandong University, Jinan, 250012, China.

出版信息

Health Qual Life Outcomes. 2021 Dec 24;19(1):271. doi: 10.1186/s12955-021-01902-w.

DOI:10.1186/s12955-021-01902-w
PMID:34952591
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC8709994/
Abstract

PURPOSE

Psoriasis is a serious health problem. Since limited research has investigated the impact of psoriasis on the quality of life of patients with moderate-to-severe psoriasis, this study aimed to explore this issue.

METHODS

A qualitative study was conducted with 22 psoriasis patients from two cities in Shandong province of eastern China participating in one-to-one semi-structured in-depth interviews.

RESULTS

Thematic analysis generated five major themes: (1) Symptoms, symptoms management and pain; (2) Functioning and activities of daily living (ADLs); (3) Psychological impact; (4) Social impact; (5) Employment and finances.

CONCLUSION

Our study detailed the effects of psoriasis on patients' symptoms, symptoms management and pain, functioning and activities of daily living (ADLs), psychological impact, social impact, employment and finances. These data can provide a reference for studying the quality of life in patients with psoriasis.

摘要

目的

银屑病是一个严重的健康问题。由于有限的研究调查了中重度银屑病患者的银屑病对其生活质量的影响,本研究旨在探讨这一问题。

方法

本研究采用定性研究方法,在中国东部山东省的两个城市中选取了 22 名银屑病患者,对他们进行了一对一的半结构式深入访谈。

结果

主题分析产生了五个主要主题:(1)症状、症状管理和疼痛;(2)功能和日常生活活动(ADLs);(3)心理影响;(4)社会影响;(5)就业和财务。

结论

本研究详细描述了银屑病对患者症状、症状管理和疼痛、功能和日常生活活动(ADLs)、心理影响、社会影响、就业和财务的影响。这些数据可以为研究银屑病患者的生活质量提供参考。