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治疗决策和全科医生的附加值:癌症患者观点的定性探讨。

Treatment decision-making and the added value of the general practitioner: A qualitative exploration of cancer patients' perspectives.

机构信息

Julius Centre for Health Sciences and Primary Care, University Medical Centre Utrecht, Utrecht University, Utrecht, The Netherlands.

Department of Innovation in Care, University Medical Center Utrecht, Utrecht, The Netherlands.

出版信息

Eur J Cancer Care (Engl). 2021 May;30(3):e13410. doi: 10.1111/ecc.13410. Epub 2021 Jan 25.

DOI:10.1111/ecc.13410
PMID:33491834
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC8243976/
Abstract

OBJECTIVE

Cancer patients are increasingly involved in decision-making for cancer treatment. General practitioners' (GPs) support in this process is advocated. Therefore, GPs need to be aware of patients' treatment decision-making process and their potential role. We aim to understand the treatment decision-making process and to explore the added value of GP involvement, from the perspective of cancer patients treated with curative intent.

METHODS

An explorative qualitative study was performed. Semi-structured interviews were conducted with 20 purposively sampled Dutch cancer patients treated with curative intent.

RESULTS

Patients' treatment decision-making process was dominated by a focus on 'safeguarding survival'. Patients generally followed the treatment plan as proposed by their physician and did not always experience having a treatment choice. The majority of patients expressed added value for GP involvement, mainly to provide psychological support, but also for providing shared decision-making (SDM) support.

CONCLUSION

The treatment decision-making process of cancer patients treated with curative intent is dominated by the urge to 'safeguard survival'. GPs should be aware of their added value in providing psychological support and their potential role to support SDM following a cancer diagnosis.

摘要

目的

癌症患者在癌症治疗决策中越来越多地参与其中。提倡支持全科医生(GP)在这一过程中的作用。因此,GP 需要了解患者的治疗决策过程及其潜在作用。我们旨在从有治愈意向的癌症患者的角度了解治疗决策过程,并探讨 GP 参与的附加值。

方法

进行了一项探索性定性研究。对 20 名有治愈意向的荷兰癌症患者进行了有针对性的半结构式访谈。

结果

患者的治疗决策过程主要集中在“保障生存”上。患者通常会遵循医生提出的治疗计划,并不总是觉得自己有治疗选择。大多数患者表示 GP 参与具有附加值,主要是提供心理支持,但也提供共同决策(SDM)支持。

结论

有治愈意向的癌症患者的治疗决策过程主要是为了“保障生存”。GP 应该意识到他们在提供心理支持方面的附加值,以及在癌症诊断后支持 SDM 的潜在作用。

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Saturation in qualitative research: exploring its conceptualization and operationalization.定性研究中的饱和度:探索其概念化与操作化
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