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智障人士用药过程的经验。药剂师应该了解什么!

Experiences of the Medication Use Process by People with Intellectual Disabilities. What a Pharmacist Should Know!

作者信息

Flood Bernadette, Henman Martin C

机构信息

Daughters of Charity Disability Support Services Dublin, Dublin, Ireland.

School of Pharmacy and Pharmaceuticals Sciences, Trinity College Dublin, Dublin, Ireland.

出版信息

Pharmacy (Basel). 2021 Jan 21;9(1):24. doi: 10.3390/pharmacy9010024.

DOI:10.3390/pharmacy9010024
PMID:33494475
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC7838794/
Abstract

There is a scarcity of information about the experience of people with intellectual disabilities in the medication use process. Six people with intellectual disabilities consented to be interviewed by a pharmacist to determine their knowledge and views of medication use. Data from semi-structured interviews were analysed using a grounded theory approach. Self-determination and risk to the quality of the medication use process were identified as theories. Literature review provided two explanations-vulnerabilities of people with intellectual disabilities in healthcare and pharmacists have a role to play in ensuring a quality medication use process for people with intellectual disabilities. People with intellectual disabilities may be 'expert patients' and can provide valuable insights into their experience of medication use. They may be 'high risk' patients but may not be recognized as such by pharmacists.

摘要

关于智障人士在用药过程中的经历,信息十分匮乏。六名智障人士同意接受药剂师的访谈,以确定他们对用药的了解和看法。采用扎根理论方法对来自半结构化访谈的数据进行了分析。自我决定权和用药过程质量风险被确定为理论。文献综述提供了两种解释——智障人士在医疗保健方面的脆弱性,以及药剂师在确保智障人士用药过程质量方面可发挥作用。智障人士可能是“专家患者”,能够就他们的用药经历提供有价值的见解。他们可能是“高风险”患者,但药剂师可能并未意识到这一点。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/a5be/7838794/e623f8452e76/pharmacy-09-00024-g001.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/a5be/7838794/e623f8452e76/pharmacy-09-00024-g001.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/a5be/7838794/e623f8452e76/pharmacy-09-00024-g001.jpg

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本文引用的文献

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The importance of supportive relationships with general practitioners, hospitals and pharmacists for mothers who 'give medicines' to children with severe and profound intellectual disabilities.与全科医生、医院和药剂师建立支持性关系对给患有严重和极重度智力残疾的儿童用药的母亲非常重要。
J Intellect Disabil. 2022 Mar;26(1):29-49. doi: 10.1177/1744629520951003. Epub 2020 Aug 20.
2
Barriers and facilitators to primary health care for people with intellectual disabilities and/or autism: an integrative review.智障和/或自闭症患者获得初级卫生保健的障碍与促进因素:一项综合综述
BJGP Open. 2020 Aug 25;4(3). doi: 10.3399/bjgpopen20X101030. Print 2020 Aug.
3
Experiences of psychotropic medication use and decision-making for adults with intellectual disability: a multistakeholder qualitative study in the UK.
成年人智力残疾者使用精神药物的经历和决策:英国多方利益攸关者定性研究。
BMJ Open. 2019 Nov 27;9(11):e032861. doi: 10.1136/bmjopen-2019-032861.
4
Do people with intellectual disabilities understand their prescription medication? A scoping review.智力障碍者是否理解他们的处方药? 范围综述。
J Appl Res Intellect Disabil. 2019 Nov;32(6):1375-1388. doi: 10.1111/jar.12643. Epub 2019 Jul 24.
5
Medication use and potentially inappropriate prescribing in older adults with intellectual disabilities: a neglected area of research.智障老年人的药物使用及潜在不适当处方:一个被忽视的研究领域。
Ther Adv Drug Saf. 2018 Jun 20;9(9):535-557. doi: 10.1177/2042098618782785. eCollection 2018 Sep.
6
Approaches to primary care of adults with intellectual and developmental disabilities: Importance of frameworks for guidelines.针对成年智力和发育障碍患者的初级保健方法:指南框架的重要性。
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