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本文引用的文献

1
The Social Life of DNA: Race, Reparations, and Reconciliation After the Genome Beacon Press, 2016. 216 pp.《DNA的社会生活:基因组时代后的种族、赔偿与和解》 灯塔出版社,2016年。216页。
Science. 2021 Sep 24;373(6562):1449. doi: 10.1126/science.abm1869. Epub 2021 Sep 23.
2
Constructing identities: the implications of DTC ancestry testing for tribal communities.构建身份认同:直接面向消费者的血统检测对部落社区的影响。
Genet Med. 2019 Aug;21(8):1744-1750. doi: 10.1038/s41436-018-0429-2. Epub 2019 Jan 21.
3
'We've been here for 2,000 years': White settlers, Native American DNA and the phenomenon of indigenization.“我们已经在这里生活了 2000 年”:白人定居者、美洲原住民 DNA 和本土化现象。
Soc Stud Sci. 2018 Feb;48(1):80-100. doi: 10.1177/0306312717751863. Epub 2018 Jan 9.
4
Mining and Environmental Health Disparities in Native American Communities.美国原住民社区的矿业和环境健康差距。
Curr Environ Health Rep. 2017 Jun;4(2):130-141. doi: 10.1007/s40572-017-0140-5.
5
Barriers and Strategies Related to Qualitative Research on Genetic Ancestry Testing in Indigenous Communities.与原住民社区基因血统检测定性研究相关的障碍与策略
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ENGAGING NATIVE AMERICANS IN GENOMICS RESEARCH.让美国原住民参与基因组学研究。
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The ancestry and affiliations of Kennewick Man.肯纳威克人的祖先与归属。
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A post-genomic surprise. The molecular reinscription of race in science, law and medicine.后基因组时代的意外发现。种族在科学、法律和医学领域的分子再书写。
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Race, risk, and recreation in personal genomics: the limits of play.种族、风险与个体化基因组学中的娱乐:游戏的局限。
Med Anthropol Q. 2013 Dec;27(4):550-69. doi: 10.1111/maq.12059. Epub 2013 Nov 8.
10
Moving forward: breaking the cycle of mistrust between American Indians and researchers.向前迈进:打破美国印第安人和研究人员之间不信任的循环。
Am J Public Health. 2013 Dec;103(12):2152-9. doi: 10.2105/AJPH.2013.301480. Epub 2013 Oct 17.

“我们无需口腔拭子来证明自己是谁”:美国原住民社区中基因族谱检测的身份认同、抵制与适应

"We Don't Need a Swab in Our Mouth to Prove Who We Are": Identity, Resistance, and Adaptation of Genetic Ancestry Testing among Native American Communities.

作者信息

Blanchard Jessica W, Outram Simon, Tallbull Gloria, Royal Charmaine D M

机构信息

Center for Applied Social Research at the University of Oklahoma (5 Partners Place, 201 Stephenson Parkway, Suite 4100, Norman, Oklahoma 73072, USA).

Center on Genomics, Race, Identity, Difference (GRID) of the Social Science Research Institute (SSRI) at Duke University (2024 West Main Street, Erwin Square Mill Building, Bay C, Suite C103, Durham, North Carolina 27705, USA).

出版信息

Curr Anthropol. 2019 Oct;60(5):637-655. doi: 10.1086/705483.

DOI:10.1086/705483
PMID:33505045
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC7837598/
Abstract

Genetic ancestry testing (GAT) provides a specific type of knowledge about ancestry not previously available to the general public, prompting questions about the conditions whereby genetic articulations of ancestry present opportunities to forge new identities and social ties but also new challenges to the maintenance of existing social structures and cultural identities. The opportunities and challenges posed by GAT are particularly significant for many indigenous communities-whose histories are shaped by traumatic interactions with colonial powers and Western science-and for whom new applications of GAT may undermine or usurp long-standing community values, systems of governance, and forms of relationality. We conducted 13 focus groups with 128 participants and six in-depth, semistructured interviews with a variety of community leaders examining the perceptions of GAT within indigenous communities across Oklahoma. Our interviews and focus groups suggest that participants-through the articulation of indigeneity as experiential and relational in nature and inherently distinct from genetic notions of ancestry-resist much of the challenge presented by GAT in usurping traditional forms of identity while at the same time recognizing the utility of the technology for tracing unknown ancestry and identifying health risks in the community.

摘要

基因血统检测(GAT)提供了一种以前普通大众无法获得的关于血统的特定知识类型,引发了一些问题,即血统的基因表达在何种情况下既为塑造新身份和社会关系提供了机会,也给维持现有社会结构和文化身份带来了新挑战。GAT带来的机遇和挑战对许多土著社区尤为重要——这些社区的历史受到与殖民势力和西方科学的创伤性互动的影响——对他们来说,GAT的新应用可能会破坏或篡夺长期以来的社区价值观、治理体系和关系形式。我们与128名参与者进行了13次焦点小组讨论,并与各类社区领袖进行了6次深入的半结构化访谈,以考察俄克拉荷马州各土著社区对GAT的看法。我们的访谈和焦点小组讨论表明,参与者们——通过将本土性阐释为本质上是体验性的和关系性的,且与基因血统概念有着内在区别——抵制了GAT在篡夺传统身份形式方面带来的许多挑战,同时也认识到该技术在追溯未知血统和识别社区健康风险方面的效用。