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从问卷到实际应用:具有不同残疾人群的生活质量评估。

From questionnaire to practical application: A quality of life profile for populations with diverse disabilities.

机构信息

National Institute of Public Health, University of Southern Denmark, Denmark.

Steno Diabetes Center Copenhagen, Denmark.

出版信息

Scand J Public Health. 2022 May;50(3):362-370. doi: 10.1177/1403494820981437. Epub 2021 Feb 2.

DOI:10.1177/1403494820981437
PMID:33530853
Abstract

AIMS

Existing quality of life questionnaires are either disease specific or generic in their assessment of themes which are perceived important to the quality of life in populations with disabilities. To be able to improve quality of life in a population with diverse disabilities there was a need for a cross-disability instrument. The Electronic Quality of Life (EQOL)-questionnaire was developed to meet this need. It is crucial that such an instrument is validated, easy to use, and interpret by, for example, clinicians and policy planners. This study aims to test the content validity of the EQOL questionnaire and to construct a user-friendly, cross-disability quality of life profile.

METHODS

To further test the content validity of the EQOL-questionnaire, we conducted field test analyses on 318 individuals (aged 16-64) with self-reported disabilities. Comments on the questionnaire were scrutinised and sorted. A profile with six domains of quality of life was developed. Model fit was evaluated by confirmatory factor analysis and content validity was evaluated based on distributions.

RESULTS

The EQOL-questionnaire was found to have an acceptable content validity and respondents from the field test found that it features important themes of quality of life. The confirmatory factor analysis estimated a satisfying model fit by the root-mean-squared error of approximation (0.06), whereas the comparative fit index and goodness of fit index indicated poorer model fit. Graphical charts, with colour categories for user-friendly interpretation, were constructed.

CONCLUSION

By identifying themes reported as problematic, the EQOL-profile can be used to inform and target interventions aiming to improve quality of life in populations with diverse disabilities.

摘要

目的

现有的生活质量问卷要么是针对特定疾病的,要么是在评估对残疾人群体生活质量重要的主题方面具有通用性。为了能够提高具有不同残疾人群体的生活质量,需要一种跨残疾的工具。电子生活质量(EQOL)问卷就是为了满足这一需求而开发的。至关重要的是,这种工具需要经过验证,便于临床医生和政策制定者等使用和解释。本研究旨在测试 EQOL 问卷的内容效度,并构建一个用户友好的、跨残疾的生活质量概况。

方法

为了进一步测试 EQOL 问卷的内容效度,我们对 318 名(年龄 16-64 岁)自我报告有残疾的个体进行了现场测试分析。对问卷的评论进行了仔细审查和分类。开发了一个具有六个生活质量领域的概况。通过验证性因素分析评估模型拟合度,通过分布评估内容效度。

结果

EQOL 问卷被发现具有可接受的内容效度,现场测试的受访者认为它具有生活质量的重要主题。验证性因素分析估计模型拟合度较好,逼近均方根误差为 0.06,而比较拟合指数和良好拟合指数则表明模型拟合较差。构建了图表,使用颜色类别进行用户友好的解释。

结论

通过确定被报告为有问题的主题,EQOL 概况可用于为旨在提高具有不同残疾人群体生活质量的干预措施提供信息和目标。

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