Center for Health Equity Transformation and Department of Obstetrics & Gynecology, Feinberg School of Medicine, Northwestern University, Chicago, Illinois, United States of America.
Galter Health Sciences Library & Learning Center, Feinberg School of Medicine, Northwestern University, Chicago, Illinois, United States of America.
PLoS One. 2021 Feb 3;16(2):e0246098. doi: 10.1371/journal.pone.0246098. eCollection 2021.
Inadequate diversity in clinical trials is widely recognized as a significant contributing factor to health disparities experienced by racial/ethnic minorities and other diverse populations in the US. To address this in a scalable way, we sought to develop a web tool that could help enhance underserved minority participation in clinical research.
We used our research literacy support flashcard tool as the initial prototype for human-centered design and usability testing of the web tool Health for All in public library settings. After forming partnerships with leadership from Chicago Public Libraries (CPL), local medical libraries, and the Chicago Department of Public Health, we conducted seven iterative design sessions with focus groups of library patrons and library staff from six CPL branches serving underserved communities followed by two rounds of usability testing and website modification.
Based on the qualitative research findings from Design Sessions 1-7, we enacted the design decision of a website that was a hybrid of fact-filled and vignette (personal stories) paper prototypes divided into 4 modules (trust, diversity, healthy volunteers, pros/cons), each with their own outcome metrics. The website was thus constructed, and navigation issues identified in two rounds of usability testing by library patrons were addressed through further website modification, followed by the launch of a beta version of a hybridized single-scrolling and guided module prototype to allow further development with website analytics.
We report the development of Health for All, a website designed to enhance racial/ethnic minority participation in clinical trials by imparting research literacy, mitigating distrust engendered by longstanding racism and discrimination, and providing connections to clinical trials recruiting participants.
临床试验中存在的多样性不足是导致美国少数族裔和其他多样化人群在健康方面存在差异的一个重要因素。为了以一种可扩展的方式解决这个问题，我们试图开发一种网络工具，以帮助增加服务不足的少数族裔参与临床研究。
我们使用我们的研究文献支持抽认卡工具作为初始原型，进行以人为中心的设计和网络工具健康为全所有人在公共图书馆环境中的可用性测试。在与芝加哥公共图书馆（CPL）、当地医学图书馆和芝加哥公共卫生部门的领导层建立合作关系后，我们对来自六个为服务不足社区服务的 CPL 分支机构的图书馆顾客和图书馆工作人员进行了七次迭代设计会议，随后进行了两轮可用性测试和网站修改。
基于设计会议 1-7 的定性研究结果，我们采取了一种网站设计决策，该网站是充满事实和情景（个人故事）纸质原型的混合体，分为 4 个模块（信任、多样性、健康志愿者、利弊），每个模块都有自己的结果指标。因此，该网站得以构建，并且图书馆顾客在两轮可用性测试中发现的导航问题通过进一步的网站修改得到解决，随后推出了混合式单滚动和引导模块原型的测试版，以便通过网站分析进一步开发。
我们报告了 Health for All 的开发，这是一个旨在通过传授研究素养、减轻长期种族主义和歧视所产生的不信任以及提供参与临床试验招募参与者的联系来增强少数族裔参与临床试验的网站。
