Department of Epidemiology and Population Health, Division of Community Collaboration & Implementation Science, Albert Einstein College of Medicine, Bronx, NY, USA.
Queens Borough Public Library, Queens, NY, USA.
Am J Community Psychol. 2017 Sep;60(1-2):145-159. doi: 10.1002/ajcp.12161. Epub 2017 Sep 15.
Reduction of cancer-related disparities requires strategies that link medically underserved communities to preventive care. In this community-based participatory research project, a public library system brought together stakeholders to plan and undertake programs to address cancer screening and risk behavior. This study was implemented over 48 months in 20 large urban neighborhoods, selected to reach diverse communities disconnected from care. In each neighborhood, Cancer Action Councils were organized to conduct a comprehensive dynamic trial, an iterative process of program planning, implementation and evaluation. This process was phased into neighborhoods in random, stepped-wedge sequence. Population-level outcomes included self-reported screening adherence and smoking cessation, based on street intercept interviews. Event-history regressions (n = 9374) demonstrated that adherence outcomes were associated with program implementation, as were mediators such as awareness of screening programs and cancer information seeking. Findings varied by ethnicity, and were strongest among respondents born outside the U.S. or least engaged in care. This intervention impacted health behavior in diverse, underserved and vulnerable neighborhoods. It has been sustained as a routine library system program for several years after conclusion of grant support. In sum, participatory research with the public library system offers a flexible, scalable approach to reduce cancer health disparities.
减少与癌症相关的差异需要将医疗服务不足的社区与预防保健联系起来的策略。在这个基于社区的参与式研究项目中,公共图书馆系统将利益相关者聚集在一起,计划和开展旨在解决癌症筛查和风险行为的项目。该研究在 20 个大型城市社区中实施了 48 个月,这些社区的选择旨在覆盖与医疗服务脱节的不同社区。在每个社区,都组织了癌症行动委员会来进行全面的动态试验,这是一个计划、实施和评估的迭代过程。这个过程以随机、逐步楔形的顺序在社区中逐步推进。基于街头拦截访谈,人群水平的结果包括自我报告的筛查依从性和戒烟,事件历史回归(n=9374)表明,参与度结果与项目实施相关,如对筛查项目和癌症信息寻求的认识等中介因素也与参与度结果相关。研究结果因种族而异,在美国境外出生或最不参与医疗服务的受访者中最为明显。这项干预措施对不同、服务不足和弱势社区的健康行为产生了影响。在资助支持结束后的几年里,它一直作为图书馆系统的常规项目持续进行。总之,与公共图书馆系统合作进行的参与式研究为减少癌症健康差异提供了一种灵活、可扩展的方法。