Department of Health and Caring Sciences, Western Norway University of Applied Sciences, Bergen, Norway.
Department of Global Public Health and Primary Care, University of Bergen, Bergen, Norway.
Diabet Med. 2021 Jun;38(6):e14535. doi: 10.1111/dme.14535. Epub 2021 Feb 16.
To explore young adults' experiences of outpatient follow-up appointments, completing electronic Patient-Reported Outcome Measures (PROMs), and using the Problem Areas In Diabetes (PAID) scale during the Diabetes Patient-Reported Outcome Measures (DiaPROM) pilot trial.
We performed a qualitative study among 19 young adults (aged 22-39 years) with type 1 diabetes who participated in the pilot trial. Between February and June 2019, we conducted individual, semi-structured telephone interviews with participants from the intervention and control arms. We analysed the data using thematic analysis.
Our analyses generated three themes, each with two subthemes: (1) Follow-up with limitations; (i) Marginal dialogue about everyday challenges, (ii) Value of supportive relationships and continuity, indicate that previous follow-up had been experienced as challenging and insufficient. (2) New insights and raised awareness; (i) More life-oriented insights, (ii) Moving out of the comfort zone, suggest mostly positive experiences with completing questionnaires and discussing the PAID scores. (3) Addressing problem areas with an open mind; (i) Need for elaboration, (ii) Preparedness for dialogue, indicate that both openness and explanations were vital in the follow-up.
Participants characterised the previous follow-up as challenging and insufficient. They described completing and using the PAID as somewhat uncomfortable yet worthwhile. Our findings also suggest that by utilising diabetes distress data alongside health and biomedical outcomes, consultations became more attuned to the young adults' wishes and needs, mainly because the dialogue was more focused and direct. Hence, the PAID has the potential to facilitate person-centredness and improve patient-provider relationships.
探索年轻成年人在门诊随访预约、完成电子患者报告的结局测量（PROMs）以及在 DiaPROM 试点试验中使用糖尿病患者报告的结局测量（PAID）量表方面的体验。
我们对 19 名患有 1 型糖尿病的年轻成年人（年龄 22-39 岁）进行了一项定性研究，他们参加了试点试验。2019 年 2 月至 6 月，我们对干预组和对照组的参与者进行了个人半结构化电话访谈。我们使用主题分析方法对数据进行分析。
我们的分析产生了三个主题，每个主题都有两个子主题：（1）随访存在局限性；（i）日常挑战的边缘对话，（ii）支持关系和连续性的价值，表明之前的随访被认为具有挑战性且不足够。（2）新的见解和提高的认识；（i）更以生活为导向的见解，（ii）走出舒适区，表明完成问卷和讨论 PAID 评分的体验大多是积极的。（3）以开放的心态解决问题领域；（i）需要阐述，（ii）对话的准备，表明在随访中开放和解释都至关重要。
参与者将之前的随访描述为具有挑战性且不足够。他们描述了完成和使用 PAID 时的不适感，但认为这是值得的。我们的研究结果还表明，通过利用糖尿病困扰数据以及健康和生物医学结果，咨询变得更加符合年轻成年人的愿望和需求，主要是因为对话更加集中和直接。因此，PAID 有可能促进以患者为中心的方法并改善医患关系。
