Internal Medicine, Palliative Medicine Program, Johns Hopkins Hospital, Baltimore, MD, USA.
1466Johns Hopkins University School of Nursing, Baltimore, MD, USA.
Am J Hosp Palliat Care. 2021 Oct;38(10):1230-1237. doi: 10.1177/1049909121991524. Epub 2021 Feb 8.
While research has shown that hospice family caregivers (HFCG) seek additional information related to patient care, pain and symptom management, and self-care, it is unknown how the use of telenovela videos for education in hospice would be received by HFCG.
To explore HFCG perceived benefits and challenges with the use of telenovelas as compared to traditional educational videos during online support group.
A mixed methods study with a concurrent triangulated design that analyzed qualitative interviews and YouTube analytics report to identify how viewers responded (number of views and their feedback) to telenovela videos as compared to traditional educational videos.
Among 39 (n = 39) HFCGs, most participants were female (80%) of White/Caucasian race, with more than high school education (85%) and they were adult children of hospice cancer patient (49%). Comparing HFCG that viewed traditional videos with HFCG that viewed telenovela videos, the telenovela video was watched more (12% longer viewing duration) and caregivers reported better content recall with informative benefits, more follow up actions and reflection about their own hospice experience.
Caregiver feedback indicated that watching the telenovela was engaging, acceptable and produced more conversations about patient care, than watching a non-telenovela format video. Further research is needed to test telenovela efficacy in enhancing HFCG outcomes.
研究表明，临终关怀家庭照顾者（HFCG）寻求与患者护理、疼痛和症状管理以及自我护理相关的额外信息，但尚不清楚在临终关怀中使用电视剧视频进行教育会如何被 HFCG 接受。
探讨 HFCG 在使用电视剧与传统教育视频方面的感知益处和挑战，与在线支持小组相比。
一项混合方法研究，采用并发三角设计，分析定性访谈和 YouTube 分析报告，以确定观众对电视剧视频（与传统教育视频相比）的反应（观看次数和反馈）。
在 39 名（n = 39）HFCG 中，大多数参与者为女性（80%），属于白种人/高加索人，受过高中以上教育（85%），是临终关怀癌症患者的成年子女（49%）。与观看传统视频的 HFCG 相比，观看电视剧视频的 HFCG 观看时间更长（观看时间长 12%），并且护理人员报告说内容回忆效果更好，具有信息丰富的益处，更多的后续行动，并对自己的临终关怀经历进行了反思。
护理人员的反馈表明，与观看非电视剧格式的视频相比，观看电视剧更具吸引力、可接受性，并能引发更多关于患者护理的讨论。需要进一步研究来测试电视剧在增强 HFCG 结果方面的效果。
