Section of Palliative Medicine, Division of General Internal Medicine, Department of Medicine, Johns Hopkins Hospital, Baltimore, Maryland, USA.
Johns Hopkins University School of Nursing, Baltimore, Maryland, USA.
J Palliat Med. 2022 Jun;25(6):945-951. doi: 10.1089/jpm.2021.0628. Epub 2022 Apr 20.
Telenovelas show significant promise as a mode of education that could potentially enhance hospice family caregivers' (HFCG) ability to manage distress or pain for themselves and the care recipient. We sought to understand HFCGs' perceived benefits and challenges of NOVELA using the Levels of Kirkpatrick as a conceptual framework. HFCGs from two hospices in the Mid-Atlantic region of the United States. Semistructured interviews were conducted to understand perceptions of HFCGs on the benefits and challenges of the NOVELA intervention. Participants ( = 20) in our study were mainly homebound, well educated, White female, and adult children of people with advanced cancer who reported mild anxiety and moderate self-efficacy at baseline. Three unique themes were identified: acceptability of NOVELA, usability and relevance of NOVELA, and the effect of NOVELA. According to our conceptual model, the intervention positively affects all three adult learning categories: reaction, learning, and behavior. Our findings suggest that HFCGs support the proposed NOVELA intervention and it appears to be an acceptable educational tool during hospice care (NCT04533594).
电视剧在教育方面具有很大的潜力,可以提高临终关怀家庭照顾者(HFCG)管理自身和护理对象痛苦或疼痛的能力。我们试图理解 HFCG 对 NOVELA 的益处和挑战,使用柯克帕特里克的层次结构作为概念框架。美国中大西洋地区的两家临终关怀机构的 HFCG。采用半结构化访谈来了解 HFCG 对 NOVELA 干预措施的益处和挑战的看法。我们研究的参与者(n=20)主要是居家、受过良好教育的白人女性,是晚期癌症患者的成年子女,他们在基线时报告有轻度焦虑和中度自我效能感。确定了三个独特的主题:NOVELA 的可接受性、NOVELA 的可用性和相关性,以及 NOVELA 的效果。根据我们的概念模型,干预措施对所有三个成人学习类别都有积极影响:反应、学习和行为。我们的研究结果表明,HFCG 支持所提出的 NOVELA 干预措施,并且它似乎是临终关怀期间一种可以接受的教育工具(NCT04533594)。