Cruz-Oliver Dulce M, Milner Gabrielle E, Abshire Saylor Martha, Nelson Katie E, Blinka Marcela D, Durkin Nowella, Smith Thomas J, Oliver Debra Parker
Palliative Medicine Section, Division of General Internal Medicine, School of Medicine, Johns Hopkins University, Baltimore, MD, USA.
1500Johns Hopkins University School of Medicine, Baltimore, MD, USA.
Am J Hosp Palliat Care. 2023 Apr;40(4):409-415. doi: 10.1177/10499091221110855. Epub 2022 Jun 30.
Recruitment and attrition are inherently challenging issues in hospice research. We sought to describe strategies of recruitment, retention, and delivery of NOVELA (short for tele), an intervention for hospice family caregivers (HFCG).
Statistics were kept of every referral, consenting participant, visit session, and intervention activity. We used the to describe recruiting strategies employed and lessons learned.
Two hospices in the U.S. Mid-Atlantic region referred 47 HFCG and N = 20 agreed to participate, out of which 50% (N = 10) completed all 4 sessions with an average of 2.8 sessions per person, each lasting an average duration of 13.5 minutes (range 8.0-25.7). The main reason for missing a session was a patient's death (N = 8). Successful recruitment strategies employed in NOVELA included: (a) intensive start-up hospice engagement, (b) remote recruitment and delivery of NOVELA, and (c) scheduling flexibility to work around caregivers' other demands.
The recruitment and intervention delivery had successes and challenges resulting in the identification of multiple opportunities to strengthen our strategy and inform future studies with HFCGs.
招募和减员是临终关怀研究中固有的具有挑战性的问题。我们试图描述新型远程干预措施（NOVELA，“tele”的缩写）针对临终关怀家庭护理人员（HFCG）的招募、留存和实施策略。
记录每一次转诊、同意参与的参与者、访视环节和干预活动。我们用 来描述所采用的招募策略和经验教训。
美国中大西洋地区的两家临终关怀机构转诊了47名临终关怀家庭护理人员，其中N = 20人同意参与，其中50%（N = 10）完成了所有4个环节，每人平均参与2.8个环节，每个环节平均持续13.5分钟（范围8.0 - 25.7分钟）。错过某个环节的主要原因是患者死亡（N = 8）。新型远程干预措施（NOVELA）中采用的成功招募策略包括：（a）临终关怀机构初期的密集参与，（b）新型远程干预措施（NOVELA）的远程招募和实施，以及（c）根据护理人员的其他需求灵活安排时间。
招募和干预实施既有成功之处，也有挑战，这促使我们发现了多个机会来加强我们的策略，并为未来针对临终关怀家庭护理人员的研究提供参考。
