Clouse Kate, Phillips Tamsin K, Mogoba Phepo, Ndlovu Linda, Bassett Jean, Myer Landon
Vanderbilt University School of Nursing, Nashville, TN, United States.
Vanderbilt Institute for Global Health, Vanderbilt University Medical Center, Nashville, TN, United States.
JMIR Form Res. 2021 Feb 8;5(2):e19243. doi: 10.2196/19243.
Peripartum women living with HIV in South Africa are at high risk of dropping out of care and are also a particularly mobile population, which may impact their engagement in HIV care. With the rise in mobile phone use worldwide, there is an opportunity to use smartphones and GPS location software to characterize mobility in real time.
The aim of this study was to propose a smartphone app that could collect individual GPS locations to improve engagement in HIV care and to assess potential users' attitudes toward the proposed app.
We conducted 50 in-depth interviews (IDIs) with pregnant women living with HIV in Cape Town and Johannesburg, South Africa, and 6 focus group discussions (FGDs) with 27 postpartum women living with HIV in Cape Town. Through an open-ended question in the IDIs, we categorized "positive," "neutral," or "negative" reactions to the proposed app and identified key quotations. For the FGD data, we grouped the text into themes, then analyzed it for patterns, concepts, and associations and selected illustrative quotations.
In the IDIs, the majority of participants (76%, 38/50) responded favorably to the proposed app. Favorable comments were related to the convenience of facilitated continued care, a sense of helpfulness on the part of the researchers and facilities, and the difficulties of trying to maintain care while traveling. Among the 4/50 participants (8%) who responded negatively, their comments were primarily related to the individual's responsibility for their own health care. The FGDs revealed four themes: facilitating connection to care, informed choice, disclosure (intentional or unintentional), and trust in researchers.
Women living with HIV were overwhelmingly positive about the idea of a GPS-based smartphone app to improve engagement in HIV care. Participants reported that they would welcome a tool to facilitate connection to care when traveling and expressed trust in researchers and health care facilities. Within the context of the rapid increase of smartphone use in South Africa, these early results warrant further exploration and critical evaluation following real-world experience with the app.
南非感染艾滋病毒的围产期妇女失访风险高,且流动性特别大,这可能会影响她们接受艾滋病毒护理的情况。随着全球手机使用的增加,有机会利用智能手机和全球定位系统(GPS)定位软件实时描述其流动性。
本研究旨在提出一款能够收集个人GPS位置信息的智能手机应用程序,以提高艾滋病毒护理的参与度,并评估潜在用户对该应用程序的态度。
我们对南非开普敦和约翰内斯堡感染艾滋病毒的孕妇进行了50次深入访谈(IDI),并对开普敦27名感染艾滋病毒的产后妇女进行了6次焦点小组讨论(FGD)。通过深入访谈中的一个开放式问题,我们将对该应用程序的反应分为“积极”、“中性”或“消极”三类,并确定关键引语。对于焦点小组讨论的数据,我们将文本分组为主题,然后分析其模式、概念和关联,并选择说明性引语。
在深入访谈中,大多数参与者(76%,38/50)对该应用程序反应良好。积极的评论涉及便利持续护理、研究人员和医疗机构的帮助感以及旅行时维持护理的困难。在4/50(8%)给出负面反应的参与者中,他们的评论主要与个人对自身医疗保健的责任有关。焦点小组讨论揭示了四个主题:促进与护理的联系、知情选择、披露(有意或无意)以及对研究人员的信任。
感染艾滋病毒的女性对基于GPS的智能手机应用程序改善艾滋病毒护理参与度的想法绝大多数持积极态度。参与者表示,她们欢迎一种在旅行时促进与护理联系的工具,并对研究人员和医疗机构表示信任。在南非智能手机使用迅速增加的背景下,这些早期结果值得在该应用程序的实际应用经验之后进行进一步探索和严格评估。